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05-12-2008, 04:18 PM
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Magnate
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I had my one year neuro appt. since going on Tysabri.
The doc did a full exam, listened to my chief complaint (still spasticity) and prescribed an increase in Baclofen ( 20 mg TID from 10 mg TID) He is pleased with my progress and so am I! Everything appears normal! Who knew that a real doctor would EVER say I was normal!  All tests from my last appt came back normal, LFT normal, everything right in the correct ranges! I have been taking 2000 mg of Vit D all winter and he was semi concerned about that, but I reminded him that I work a long night shift and don't SEE the sun for months, and since the levels were within normal range He said keep it up and we will check again in 3 months. I started the Baclofen yesterday and as I posted on another thread, I was able to put my socks on without a struggle! I went to work last night and I made it ALL night without having to HOIST myself out of the chair and wait before I walked! I just got up and walked when I wanted to. I got stiffer as the night ended and when I came home this morning I was ready for more, so I took the last dose with my tizanidine and went to bed. This afternoon I got right out of bed without stretching!!! ( I had to go reaaally bad!) I went back to bed just to do the stretches because it's routine now, but I FELT like I could have skipped them. One thing we noted is that I haven't been SICK even once during this whole year! No colds, no infections, no blurting, no rashes, no NOTHING! I don't get sick much anyway but it's strange not to have even had a cold, especially with the population I work with coming down with everything under the sun in the past few months! Just this last month it's been diarrhea and vomiting non stop at work!!  I am glad that we have drugs. I was NEVER a pill popper, always worked through illness, hardly even took aspirin except for menses pain. I've even gone off the Tylenol 3 I took for that! (Could Baclofen work on mens. cramps??) Now I am willing to try what my doc suggests when I DO have problems. If it doesn't work I can always quit, but things are better with drugs! I guess ya live and learn, huh?  I feel like I have been waiting for the other shoe to drop for the past year and something bad to happen. Now if it does, I can bend down and pick it up!! Infusion # 14 on May 22! Onwards and upwards! 
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | AfterMyNap (05-12-2008), AZjanie (05-12-2008), barb02 (05-12-2008), Blessings2You (05-12-2008), Carolina (05-12-2008), DM (05-12-2008), ewizabeth (05-12-2008), FinLady (05-13-2008), Jappy (05-13-2008), Jodylee (05-15-2008), KarenMarie (05-12-2008), Keely (05-12-2008), Kitty (05-12-2008), MSacorn (05-12-2008), Natalie8 (05-12-2008), prettypearlgirl (05-12-2008), SallyC (05-12-2008), soxmom (05-12-2008), sugarboo (05-15-2008), Taffy (05-12-2008), Twinkletoes (05-12-2008), Victor H (05-12-2008), yeahbut (05-12-2008) |
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05-12-2008, 04:54 PM
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Senior Member
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Yeeee Haaaa !!!
Good for you !!!! |
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| "Thanks for this!" says: | Riverwild (05-12-2008) |
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05-12-2008, 04:58 PM
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Senior Member
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River glad everything went well for you that is awesome!!!!
I can't take baclofen because it doesn't work for me..I take zanaflex and YES I have used it for menstrual cramps and it works great! So I say try it and see! 
__________________
Renee One's dignity may be assaulted, vandalized and cruelly mocked, but cannot be taken away unless it is surrendered. |
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| "Thanks for this!" says: | Riverwild (05-12-2008) |
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05-12-2008, 05:07 PM
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Magnate
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Oh my friend I am sooooo very happy for you! As you know I take Baclofen and wouldn't go without it! Did that once and won't ever do it again. I am now taking the 20mg 4x a day. There are some days I only take it 3 times but I won't go without....
Congratulations now I want his number so I can get into him! 
__________________
Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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| "Thanks for this!" says: | Riverwild (05-12-2008) |
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05-12-2008, 05:22 PM
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Member
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Glad to know that everything is going so well!
Whoo hoo!!!! I would call it the Tysabri superhero solution. (TSS) 
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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05-13-2008, 02:46 PM
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Grand Magnate
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Quote:
So Nancy, are you able to leap tall buildings in a single bound? Or do you just push them outta your way? 
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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05-12-2008, 05:24 PM
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Wise Elder
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Congrats RW! I can't compare like these girls, I'm just a caregiver. LOL
I love good news and thanks for sharing yours!
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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05-12-2008, 06:49 PM
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In Remembrance
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Oh, I love to hear good news, like this. WooHoo!!
Congrats!! 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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05-12-2008, 07:30 PM
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Wise Elder
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Wowwweeeeeeeee!!!!!!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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05-12-2008, 08:09 PM
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Legendary
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Now that's something to CROW about!!
Great news, RW~~
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DM . |
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| "Thanks for this!" says: | Riverwild (05-13-2008) |
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