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Old 10-27-2006, 04:03 PM #11
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Cherie, mark one of your friends out on waiting for their results. I am in. Just found out today. I am so excited.
Good luck to you Ewizabeth!
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Old 10-27-2006, 09:11 PM #12
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Sweety,

Again, congratulations!! I'm very happy for you! Keep us posted on your progress!
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Old 10-27-2006, 11:43 PM #13
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Nice going, Sweety. Please do come back and let us know how it's going.

Much luck to all our Pioneers. Still keeping everything crossed for you Ewizabeth.
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Old 10-28-2006, 05:59 AM #14
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Thanks. I had started a blog about it and now that I actually have something to write about I put the link in my profile.
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Old 10-28-2006, 09:38 AM #15
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Thanks Sally. You're a sweety!

Sweetyhide, I read your blog, it's nice of you to keep your progress up like that online. I subscribed to it with my Yahoo account. I'll be rooting for you from the sidelines! I like your many kitty pictures!
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Old 10-28-2006, 10:55 AM #16
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I am so happy for you SWEETY!!!!!!!!!!!! CONGRATULATIONS!!! If I wasn't doing so well on LDN, I think I'd be trying to find a way to get myself.

Elizabeth, I sure hope you and my other friend Debee get in too!

As far as the T-Cell testing, I'm wondering if anyone knows enough about this blood test; whereby you have to be producing some sort of T-Cells () to be accepted?

This is above my head at the moment, but for me, it begs the question of why they don't use this testing to help dx MS, if it is a major factor for being accepted into this trial?

http://www.nationalmssociety.org/Sou...-T%20Cells.asp

http://ihavems.com/

Thanks, Cherie
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Old 10-28-2006, 02:10 PM #17
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Quote:
Originally Posted by lady_express_44 View Post
Elizabeth, I sure hope you and my other friend Debee get in too!

As far as the T-Cell testing, I'm wondering if anyone knows enough about this blood test; whereby you have to be producing some sort of T-Cells () to be accepted?

This is above my head at the moment, but for me, it begs the question of why they don't use this testing to help dx MS, if it is a major factor for being accepted into this trial?

http://www.nationalmssociety.org/Sou...-T%20Cells.asp

http://ihavems.com/

Thanks, Cherie
Cherie,

If they find that this works the way they think it does, then maybe it will be used to diagnose MS at some point. I wonder what the cost of doing the test is? Since this is experimental so far, it could be a cost prohibitive test at this time. If it does work well, and the test becomes commonplace, then it would make sense that they could also use it for the diagnosis process.

I know that doesn't really answer your question and I hope a person who is more scientific than me will jump in here.

I hope your friend Debee gets into the trial too!
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Old 11-25-2006, 01:54 PM #18
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So happy for Sweety on getting accepted into the Study for Tovaxin. Ewizabeth, I am hoping you also make it in.

I have a friend that wanted me to Post this here hoping it might help answer questions about the vaccine.

"One of the protocol criteria is that the patient can produce T-cell vaccine. To be able to produce T-cell vaccine, the patient must have myelin reactive T-cells. Myelin reactive T-cells as the name implies are T-cells that when introduced to human myelin react as if myelin is a foreign intruder."

Is it okay to Post a URL? Hope so. Thank You!!

http://www.clinicaltrials.gov/ct/sho...245622?order=1
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Old 11-25-2006, 02:55 PM #19
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I see that one of our local Neuros is part of the study. If I were under 55 and still RRMS, I would jump on it. The center is about 20 miles from me.

I will make sure that local PwMS, who fit the criteria, are aware of this.

Thanks for posting and yes pertinent links are allowed here.

Ewizabeth..YoooooHooooo!!! How did the test go, yesterday? Did they find enough of the little bastids to make your vaccine?
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Old 11-27-2006, 10:01 PM #20
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Hi Scotch Lass and Sally,

Well, all that happened is we went over the details of the trial, checked my history to make sure I'm eligible and I signed the paperwork.

I stopped Copaxone, and also Nasonex, since it has a small amount of steroids in it. I go back December 29th for the next steps, which includes the initial pint of blood to see if they can make the vaccine. We are hoping for many little bastids... I must have lots of the little bastids!!

I'll keep you posted to whatever happens next! Thanks for thinking of me ladies!
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