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Old 05-18-2008, 09:57 AM #1
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I can only speak for myself here..It's not so much the "count the lesion" game (though I understand and agree with what you're saying)..It just lets the air out of my sails when I hear there are more. I know control is an illusion (and not just with MS), but it's disheartening to do "all the right things" and still have this happen. I get over it, for sure..But it's still a bummer.
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Old 05-18-2008, 11:15 AM #2
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Quote:
Originally Posted by SandyC View Post
Awww Jessie, you know we are here for you girl! Lesions are just that, stupid little lesions that serve no purpose but to scare the daylights out of each other. Jim has a ton of them but his last MRI only showed one active one, the others dim. It's the placement of where they are in most cases that really matters in the long run.

I honestly can't imagine what it's like to have something in your body that you have no control over. But we are great listeners!
You are great listeners! Lesions are big fat jerks!

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Originally Posted by PolarExpress View Post
I'm sorry Jess..I have an appointment with my neuro next month to go over my latest MRI, sporting at least one new lesion (I just didn't ask when they called). You're not whining! It's good to be able to get out whatever you're feeling to people who've been there..We're all here for each other, that's the whole point of this forum, isn't it?
Thanks PE!! I know that I have MS, I don't expect them to say hey you're cured! But it's still a little blow, you know? And it does feel good to get it out here, thank you again PE!!! You Rock!

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Originally Posted by MooseasaurusRex View Post
Come here.

Moose size hug time!

(Wow. You smell nice).

Vent away beautiful. It's part of what we do here. Keeping it in allows it to fester and grow into something worse.

Here endeth the lesson.
Aww thanks Moose!! I needed the big bearhug!! It does help so much to vent on here, you guys are sll so positive and supportive!! (Oh, and that's my new body wash, fresh citrus. It has real orange and mango extracts! LMAO)

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Originally Posted by lady_express_44 View Post
Well, theoretically, this is the reason we are on the DMD's, to hopefully reduce the number of lesions and attacks. What drug are you taking, and did he mention considering a switch?

I don't get MRI's as I will not switch my drug of choice anyway. My neuro says "what's the point in knowing then?", and I agree . . . why stress yourself out if you have no intentions of changing meds anyway?

Cherie
LMAO!! I think that's how I'm gonna go now, what's the point in knowing then?! I'm on 44mcg of rebif now, and we've been very pleased with it mostly. It's been my best bet so far, and I don't think I'm changing anytime soon. Time will tell I guess, heehee!

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Originally Posted by Jules A View Post
I know how stressful this whole thing can be.

Imvho unless someone has a near clear MRI playing the "count the lesion" game isn't always the most productive. Its my understanding that since the images don't have the exact same placement from one MRI to the next, I have heard lesions can show one time and then disappear the next and that different Docs can count different numbers on the same film so I look at the MRI as just one puzzle piece but not the whole picture.


Although in all fairness my "numerous lesions" doesn't really led itself to a solid count so maybe thats why I don't pay too much attention. I do keep getting MRIs aprox. every 18 months just to see in case there is a significant change because at that point I would most definitely change therapies.

Hang in there and please if you find a way to keep them from getting bigger let us know!
I have lots of dim or inactive lesions. thankfully none of those are active. The two new ones look like headlights, LOL!! You know what Jules?? I'm gonna turn a room in my basement into a laboratory, and I'm going to become a mad scientist! I'll figure this junk out, none of these other yahoos out there in the medical field testing places are going to! I'll take care of business!!
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Old 05-18-2008, 11:32 AM #3
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Originally Posted by JessieSue View Post
I have lots of dim or inactive lesions. thankfully none of those are active. The two new ones look like headlights, LOL!! You know what Jules?? I'm gonna turn a room in my basement into a laboratory, and I'm going to become a mad scientist! I'll figure this junk out, none of these other yahoos out there in the medical field testing places are going to! I'll take care of business!!

Go get'em Girl! We are behind you all the way. I will be anxiously awaiting your breakthrough. I got plenty of those darn lesions I'd like to make go poof.
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