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05-24-2008, 04:08 AM
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OMG - i think i may never fall asleep again. im in agony not being able to sleep. and trust me - i am a lifer in the insomnia category - so that part isnt new - except - my body and my brain - REALLY want to sleep, to shut down...and it isn't happening.
because my neuro did not see fit to return my call Wed. night or all day thurs or all day fri - despite my numerous messages - i am now in the throes of a bad bad exacerbation. neuro finally called at 5something this evening - fri eve before a holiday weekend! he said his people would start working on getting the IVSM set up for me. Well, then a few hours passed, and ive heard nothing. double vision and vertigo increasing majorly. Called doc on-call from his office. He returned my call - and he was familiar with the sitch - b/c when i called office at 4:45, the lines were being directed to emergency on call doc - and i told him what was happening. well 10 mins later my neuro called. i assumed he had spoken with my neuro, but no, my neuro started the process for the ivsm. i asked, what happens in i cant g it over the weekend? do i just suffer? no answer. so, at 8:30 i paged the on-call doctor and he called me back. he felt genuinely bad that this was happening and no relief in sight. he wanted to do have oral solu-medrol - that thought freaked me out - he said there is a liquid form that i can drink (but to mix in smoothie or something). He said he'd look for a pharm that had it. CVS, my pharm called a little bit later and said they had the rx filled for me. it is pill form prednisone - 20 pills a day to total 1000mg (1gram) of prednisode a day. the pharm kept telling me how unusual and what a high dose it is but that he kept asking doc and doc was fine and explained it to him. lol. the pharm only had 79 of the 100 pills i need. the rest will be in on tues. i hope this oral form works. the ivsm was great, no real major side effects. i took my first dose - 10 nasty tasting pills - at 9:20pm. then at 10, i took my night time meds (ambien and ativan). Got into bed - can barely hold my head up - im feeling so lousy from the sx of the exacerbation. was in bed for 20 mins, then i could deal or sit still. so now im sitting back in living room. im in agony because my body and brain just want to sleep. it's 2:05am. i took another half of sleep pill in hope that it works. i need to be up at 9am because i have a 2hr session with a client at 10. then i have a 2 hr consultation group with my colleagues. unfortunately,t hat drive is further away, so i dont know how i will get there. i can drive shorter distances - i will wear an eye patch to help eliminate the double vision. ugg. sorry, im just whiny right now. im miserable. someone come hit me on the head with a big rubber mallet.  
Last edited by RedPenguins; 05-24-2008 at 09:29 PM. |
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| "Thanks for this!" says: | jess18 (12-03-2008) |
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