Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Psychology research study with MS patients - we'd greatly appreciate your help

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 05-28-2008, 03:34 PM #1
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
  
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Arrow Psychology research study with MS patients - we'd greatly appreciate your help
message from Mathew Curtis at Univ SoCal

Quote:
Hello,

I am a researcher at the University of Southern California. I am currently conducting a short online survey about how people think about and cope with illness. It is hoped the results of this study will improve understanding of how people deal with illness and assist the medical profession in improving their support of future patients. I am especially interested in having people with multiple sclerosis take part in the study.

People who have already taken part in the study have reported the study to be interesting. Typically, people have mentioned that the study encouraged them to think about their illness and that this reflective thinking was helpful to them.

If you wish to learn more about this study, which takes about 20 minutes to complete, please click on the link at the bottom of this email. Everyone who takes part in the study will be entered in a lottery; the winner of this lottery will receive a check for $200. We are expecting about 500 people to complete the study. Therefore your chances of winning the prize are 1/500.

Link to study
http://www.psychexperiment.net/616/box.php

If you know other people with multiple sclerosis who may like to take part please pass on this link to them.
To take part in the study you must be at least 18 years old.

If you have any questions please feel free to contact me. Thank you for your time,
Mathew Curtis
mcurtis@usc.edu
Psychology Researcher
DocJohn has approved this message
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by Chemar; 05-28-2008 at 05:24 PM. Reason: clarifying
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (05-28-2008), Kitty (05-29-2008), Quixotic1 (05-30-2008), Snoopy (05-28-2008)
Old 05-28-2008, 04:15 PM #2
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default
Okay, I did it!

Wonder what I'll do with that $200 prize???
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!

LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
Old 05-28-2008, 05:23 PM #3
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default
Rochelle, I am going to get the money I thought some of the questions were strange.

Barb
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Twinkletoes (05-28-2008)
Old 05-28-2008, 05:53 PM #4
Blessings2You's Avatar
Blessings2You Blessings2You is offline
Elder
  
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Default
I wonder how many of my answers would have been different had I done the survey earlier in the day...?
__________________
*
*
*

**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
Blessings2You is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-29-2008)
Old 05-28-2008, 05:57 PM #5
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
  
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default
I had a hard time with some of the questions too, because it is too hard to generalize our state of mind with a R/R or fluctuating disease such as MS.

I think it should have given options like "sometimes", "rarely", etc., rather then "strongly agree" & "strongly disagree".

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 05-28-2008, 06:36 PM #6
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
  
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Default
Mathew will, I am sure, be returning to this thread for discussion.
That's a real important point IMHO re responses depending on how one is feeling at the time.

Anything that can point Doctors to having clearer understanding is something worthwhile I think.
thanks a lot to those who choose to participate.
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
Old 05-28-2008, 06:44 PM #7
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
  
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default
The money is mine, all mine!

I agree, the instrument is not well-focused and does not allow for the varying reactions dependent on how long we've had MS. I see where he's trying to go with it but I'm rather indifferent toward the whole MS experience after all these years, where, 20 years ago, I'm sure my reactions would have been far more distinct. The "story" has happened to me dozens of times and honestly, I just talk to the person like another person. The scenario presumes that we'll have some absolute reaction to it. Nada, here.

*adding $200 to account balance*
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN

"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Twinkletoes (05-28-2008)
Old 05-28-2008, 06:54 PM #8
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
  
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default
I got the impression it wasn't disease specific.

Already spent $200!
__________________
Cheryl
Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 05-28-2008, 07:04 PM #9
Abbie's Avatar
Abbie Abbie is offline
Elder
  
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default
I was sent a request to participate in this survey also... It was sent from a friend at USC who was asked to send it to anyone they knew with a disease or illness....

I noticed this part at the very beginning:

Please only participate in this study if you are currently ill. By currently ill we mean suffering from some sort of illness or disease. The severity of this illness can be relatively minor such as the common cold to something more serious such as cancer or AIDS.


I have a feeling that many more people will be responding than the 2000 they are expecting...... they have four $200 lottery winners.
__________________
My avatar pic is my beautiful
niece Ashley!

.
Rest in Peace
3/8/90 ~~ 4/2/12
Abbie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (05-28-2008)
Old 05-28-2008, 08:08 PM #10
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
  
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default
Quote:
Originally Posted by Abasaki View Post
Please only participate in this study if you are currently ill. By currently ill we mean suffering from some sort of illness or disease. The severity of this illness can be relatively minor such as the common cold to something more serious such as cancer or AIDS.

We are always "currently ill" and "suffering from disease" . . . or at least I am. The answers though, are dependant on how active the disease is at the moment, even though it always affects my life.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 12:25 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home