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Old 06-03-2008, 04:54 PM #1
Desinie Desinie is offline
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Desinie Desinie is offline
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Join Date: Jan 2008
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Originally Posted by Dejibo View Post
What my MS center likes to do is compare the new MRI to the old MRI, and then based on the pattern of old lesion load, vs the pattern of new lesion load they make a determination on what to do, and how best to handle it.

Clear as mud?

I am surprised they went 8 years with no MRI study on you.

I hope they are able to pull your old records from the archieves and give you some clarity.

NEVER let the MD rush you. Firmly plant your behind in that chair, have your list of questions at the ready, and when he says something that confuses or upsets you, say...Can you please explain what that means? I dont care if it takes all day. You deserve answers and clarity.

Good luck.
I usually always take a list when I go to the neuro, but feel so rushed by him that I don't get to all of my questions. Usually I get very vague answers from him such as, " I'd say you're doing ok or stable." I'm fairly certain that my neuro is just about ready for retirement. His nurse that I spoke to on the phone like last year told me so. When I was checking out to leave from my appt. with him on April 30th, the secretary said they didn't have his schedule yet to make an appt. for 6 months from then.

I think when I reschedule for my next appt. I'll make it with the other MS specialist who is in that practice. Thanks for the push I needed to be more vocal with my neuro to get answers and better care. I did know all along what I needed to do, but I guess felt intimidated by him so wasn't as vocal about getting what I needed from him as I should have been.
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Old 06-04-2008, 07:40 AM #2
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Dejibo Dejibo is offline
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Dejibo Dejibo is offline
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I would make sure that the next appointment went VERY differently if I were you. Go in with your boxing gloves on. The moment he walks in the door, tell him. I FEEL DISMISSED. I NEED you to SIT down and TALK to me. I understand that you have a office full of people that are clamoring for your attention, BUT for this moment, YOU BELONG TO ME. So, please, sit down, and lets start over. Most MDs get into a rush rush rush frame of mind, and will rarely slow down unless someone calls them on their bad behavior.

If you still feel dismissed after speaking up for yourself. I would seek out a new MS neuro. Go to an MS center.

This disease is too awful, and we can become too fragile too quickly to be dismissed.

Wanna borrow my boxing gloves?
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Desinie (06-05-2008)
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