[Erin524]

Went to a local carnival/italian food festival today.

It was about 80 degrees out...I think I can see (or not actually see) that it's going to be a dim summer for me with the stupid Uhthoff's Phenomenon.

I was seeing fairly well when I left my house, took some sunglasses with me. Boyfriend ran the a/c on the way downtown and we even stopped at the gas station for frozen Cokes (Slurpees)

We were at the carnival for maybe an hour. Basically walked around, bought some lottery tickets, ate some toasted ravioli's and watched the Missouri river ooze downstream. (there's a reason the call it the Muddy Mo)

It was about the time that we were sitting in the shade, scratching off the lottery tickets (won a $1) that I took my sunglasses off. My right eye, which used to be my good eye is definately the baaaaaaaaad eye now. I looked at my boyfriend while keeping my left eye closed.

I could barely see his face with the new bad eye. Checked him out with the good eye, and could see him fine.

I'm really not looking forward to summer. It gets a lot hotter than 80 degrees here in the summer. I guess I'll be a mole and hide in my Bat Cave (the basement) for the summer. At least it's nice and cool down here. 65 degrees year round, and COLDER if the a/c is on. Our upstairs gets warm and the a/c comes on more often. At least I'll be able to chill in my basement, and my Slurpee's will stay frozen longer.

I wish the stupid Uhthoff would go away tho. It seems to only bother my eye so far. I'm betting the warmer it gets, the more I'll notice other aspects of Uhthoff.

[sassy]

Sorry to hear this Erin. Take care in the heat!

[viseeu]

I'm sorry you having problems with the heat already, Erin. Guess most of us aren't too fond of summer heat and when anything interefers with our vision... WAHHHHH!!! I pray things will stabilize for you and that you are able to squirrel away to cool spots and find relief.

[Erin524]

What I dont quite understand tho is that I can take a hot shower, and it doesnt bother my vision as much as walking around outside in the sun did yesterday.

Is heat from the hot water not the same quality of heat as walking around in hot bright sunlight?

Last night when I went to bed, I was cold, so I wrapped up in one of my crocheted shawls that I made, and had the throw my boyfriend got me for christmas one year, and felt pretty good for a few hours until I woke up all hot and sweaty. Had to turn my ceiling fan on and lay there with no blankets until I got cold again and curled up under the blankies and went back to sleep.

argh! at least the heat seems to only bother my eye so far...and I'm happy that it seems like it's not bothering my left eye that had the ON so bad when all this crap first started. That sort of tells me that my optic nerve for the left eye recovered some myelin when it healed.