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Old 06-13-2008, 06:31 PM #11
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cherie,

i'm very glad that you caught this early.
i think your quick action saved you a whole lot of trouble.

feel better.
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Old 06-13-2008, 06:36 PM #12
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I faxed my neuro about a left handed burning sensation. Not remarkable, but most things happen on my right side. I got a call from her nurse stating I should have another Mri since it had been awhile.
This time I asked for a copy of the report and got a copy of the previous report. No big changes but one new lesion in the area that causes you to see flashing lights or spots in the visual field.
Can't say I've ever experienced that, but I didn't feel too bad knowing I only had one change since 2003.
That is a good thing......right?

Anyway, my advice is to learn your docs fax number and document your concerns and fax it to them. If its important, they will call you back with instructions to come in. That way you don't forget things that happen to you....and you feel like you are not bothering them with trivial stuff. I let them decide if its important and I feel I'm being proactive in my own healthcare. Don't ignore anything...write it down and fax it
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Old 06-13-2008, 09:39 PM #13
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Good advice!
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Old 06-13-2008, 10:31 PM #14
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Thanks Erin, I'll have to see if we have them in Canada too . . . I suppose we probably do.

Quote:
Originally Posted by Desinie View Post
I've had a few UTI'S before without the normal symptoms of burning or pain with urination because of having neurogenic bladder secondary to the MS ( I have urgency and frequency often, without having a UTI). Instead, I noticed an increase in MS symptoms, just as you described.
Sounds like we've been ridin' in the same leaky boat, Desinie. I've had several UTI's before, but normally I'd get some pain/burning, significant hesitancy, frequency, incontinence, discoloration. I guess if I think about it, I did have a few indicators this time, but clearly none of them registered in my brain. It was the MS symptoms escalating over a week or more that triggered the brain into action.

Cindy, I should know better . . . but have always ignored my medical stuff as long as possible. It would probably pay to be more vocal about sudden changes, cause at least someone would kick my @$$ when I need it.

Good advice too, karilann. No news IS good news (re: your MRI). That is great stability after 5 yrs . . . whatever CRAB you are using seems to be doing what it should.

Cherie
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