NeuroTalk Support Groups - I am so stressed over this but probably shouldn't be

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When my MS doctor said she wanted me to find someone closer to home to see me if I needed something quickly I was worried.
I am not sure I can find a neuro in this area who has a good beside manner. Many of he people in my area do what I did and travel the 3 hours one way to get a good doctor. We do have some wonderful PCP's in this area but great specialists up here are harder to come by. I think a PCP might be more open to taking orders from a specialist. Seems like the MS doctor and neuro might bump heads a bit.

Yes, children with Downs are very sweet. They are actually very smart and can do anything any other child can do. We think we have a wonderful family. The kids are great. They are progressing and doing very well. At least three of them will be pretty independent.

They are very helpful around the house and love school. Our 11 year old daughter is reading, writing, spelling, can do most anything normal 11 year old girls do. She loves Hannah Montana and has a "boy friend" who lives right next to us. He is autistic.

I get offended easily when a doctor automatically assumes my health problems are caused by my children. It's just not correct.

LA

Quote:

Originally Posted by NurseNancy (Post 306634)

that dr has no bedside manner. and no manners at all.

it is possible that a 2nd visit will be better. at least he knows you have MS.
on the other hand the idea of your current dr working with your pcp is a good idea.

Down Syndrome children are so open and loving.
you must have a wonderful family.
blessings to you.

Thanks Becky. :hug:

LA

Quote:

Originally Posted by Becky21 (Post 306621)

LA,

I still get angry thinking about that doctor asking you why you have so many kids.:mad:

You and hubby are so amazing to have all your babies and take little children who need love as your own.:) It's just wonderful and I know you love them as much as they love you.:)

The stress factor seems to play such a big role when doctor's don't know what is wrong with us. I had it from several Neuro's and one Cardio and a couple of PCP's over my long adventure with MS. They just don't want to admit they don't know so they make us question our sanity.

Thankfully, I now have a Neuro, PCP and Cardiologist that I trust completely. If I don't like a doctor, I move on the the next and it eventually works out.

Hang in there and you will find a good doctor. Just keep looking and don't settle if you can't feel comfortable and communicate.:hug:

To me this is just like saying to someone that my broken arm hurts worse than theirs. Or my head ache is worse than anyone else's.
It is impossible to say what level of stress another person can handle because only THAT person really knows.

Some people would find 7 children stressful. But others see 7 children as a small family. There is a family on TLC who are on their 18th (I believe) biological child! To me that is amazing!

I was only able to give birth twice because of medical reasons. So in my mind giving birth 7 times is beyond my comprehension.

But anyway. Why do we all who have medical issues know one size does not fit all yet the more educated doctors think it all has to be by the book?

LA

Quote:

Originally Posted by momXseven (Post 306390)

That's what I was thinking also.
I get ALL kinds of "looks and questions" from Dr.'s about having 7 kids, even if they were planed from Dr.'s that are NOT my OBGYN's and if I'm "happy" with having all of them. :rolleyes: Most of them just tell me that having so many is too much stress for me. :eek:

Hi and thanks so much for your kind words. :hug:

Your suggestion just opened up some other possibilities for me.

My MS doctor wanted me to have a doctor locally who would be able to help with steroids or what ever might come up in between my check ups with her.

My PCP said he'd preferred I find someone besides him because he does not know enough about MS to feel comfortable. He only has 3 of us with MS. We are in a very small country community.

But there are other PCP's and internists around here. The neurologists in this area seem to be stuck on the same page when it comes to MS.

I was shocked when this doctor moved the conversation away from the reason I was there and started to add his own opinion. My MS doctor said NOTHING about our family size and I was not there for a second opinion.

I was afraid another neuro would try to throw their own opinion in on my situation. So in the end, after the trauma, he said it was MS.

Thank you for the link. I will go out there and post about the doctors I have seen!

LA

Quote:

Originally Posted by gamgam (Post 306247)

I am way too opinioned and I know it but I have to say something about how you were treated.

First, I want to tell you what a wonderful people you and your husband are. To give a loving home to children that would otherwise grow up in state home with out the personal love and attention that you are providing says so much about you. I resent that this Dr verbally abused you as he did. He had no right at all to treat you like he did.

Sometimes we are so shocked that we were treated the way we were that we do not respond promptly. It sounds like that is what happened to you. If he was having that bad a day, he should have rescheduled his patients and carried his ***** home for the rest of the day!

I was wondering why you need this guy anyway. If the MS Dr knows the treatment she would order, couldn't she work with your local Internal Medicine Dr if you needed to be treated with steroids? I know that is what I have arranged with the MS specialist that I go to in Atlanta. I do not see a local Neuro because they really did not think I had MS and would not review all that was going on with me when I was sent to them so my Internal Med Dr sent me to Atlanta to a MS Clinic and its about 1 1/2 hrs from us and I go there ever 6 months unless there is something going on then I am seen more often.

Ask your local Medical Dr if they are willing to work with the MS Specialist. I hate to think of you ever having to go back to that Dr. I know it sounds like I am taking this personal and maybe I am. I am just so tired of people getting mistreated by the medical community.

I certainly hope you will go to the rating site and give us a heads up on this dr so others can stay away from him if they are given a choice. The site is www.msneuroratings.com

Take care and again I say thank you for opening your home and heart to those precious children.