advertisement
Reply
 
Thread Tools Display Modes
Old 06-20-2008, 12:38 PM #1
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default NMSS - Why do they do this?

Every time I find a great link for information from the NMSS, they move it to some other location and the link doesn't work a few months later. What's with that?

I know some of you are connected to the NMSS, and wonder if you have (or can get an answer) on why they do this? How are we to keep people informed if they move the links all the time . . . unless we post the WHOLE article (and link) on the forums?

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (06-20-2008)
Old 06-20-2008, 01:49 PM #2
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Default

I agree 100%. I had one bookmarked because I liked to add it in some newbie posts and all the sudden...gone!
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
Old 06-20-2008, 03:11 PM #3
starfish starfish is offline
Member
 
Join Date: May 2008
Location: NY
Posts: 166
15 yr Member
starfish starfish is offline
Member
 
Join Date: May 2008
Location: NY
Posts: 166
15 yr Member
Default

I think you should point this out to NMSS because it hurts the population they are serving.

I have this issue with state or federal websites I use for education when a new administration comes in. If it ain't broken don't fix it
starfish is offline   Reply With QuoteReply With Quote
Old 06-20-2008, 07:04 PM #4
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Well, since I am a Representative for the NMSS, I will take it up with them. We are having a meeting next week and I will ask...

I know that the website just underwent a huge revamping.

Cherie, could you PM me with some specifics?
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (06-20-2008), weegot5kiz (07-12-2008)
Old 06-20-2008, 09:34 PM #5
starfish starfish is offline
Member
 
Join Date: May 2008
Location: NY
Posts: 166
15 yr Member
starfish starfish is offline
Member
 
Join Date: May 2008
Location: NY
Posts: 166
15 yr Member
Default

Cheryl, you amaze me. You are so active in so many issues related to MS. Thank you!
starfish is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
weegot5kiz (07-12-2008)
Old 06-20-2008, 09:36 PM #6
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post
Well, since I am a Representative for the NMSS, I will take it up with them. We are having a meeting next week and I will ask...

I know that the website just underwent a huge revamping.

Cherie, could you PM me with some specifics?
Thanks Cheryl . . . done.

MOST links disappear in short order, at least the one's I seem to interested in.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 06-20-2008, 10:54 PM #7
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Very important concern...

Yes, it would be great to have this concern brought up. Those who redo the website may not have any idea of the discouragement it causes. I know, there are times with ms, when it's just all we can do to type our concern and pray for some help. Then to have some of your great folks to give us the exact link to click on (which can be of great effort for you) then to try to go to it and it no longer be available. Not to whine, but I can say firsthand that by then, I'm too discouraged and exhausted to even persue it any longer (at times). So, Cheryl, thank you so much for asking about it. And thank you to those of you, Cherie and others, who take the time to share your expertise.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
Old 06-21-2008, 07:45 AM #8
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

They do it because its fun to watch those with Cog Fog wander the hallways wondering where everyone went to.

Hire the handicapped, their fun to watch.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GladysD (06-24-2008), jprinz99 (06-24-2008), lady_express_44 (06-21-2008)
Old 06-26-2008, 12:39 PM #9
Becca44's Avatar
Becca44 Becca44 is offline
Member
 
Join Date: May 2007
Location: Minnesota
Posts: 335
15 yr Member
Becca44 Becca44 is offline
Member
Becca44's Avatar
 
Join Date: May 2007
Location: Minnesota
Posts: 335
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
Every time I find a great link for information from the NMSS, they move it to some other location and the link doesn't work a few months later. What's with that?

Cherie
Hi Cherie,
I manage a few large corporate websites so, if they're at all similar in their approach, a very good way to get your feedback to them is here:

http://www.nationalmssociety.org/ContactUs.aspx (there's a specific category for website concerns)

Links deeper within sites (especially informational content, not transactional) do change over time...
Sometimes its part of an overall strategy to keep a site fresh and current.
But it's also used to dissuade perpetuation of info that's outdated or no longer being promoted by the site sponsors.
OR (and this happens a lot) the pages being linked to are no longer in production at their source (through no fault of the NMSS because they can't control/ensure content on other sites) so, the links have to be removed.

Even if a link is still active, a good reason to test a link before sharing it is to determine whether or not the content has been modified. You might not always be sharing the info you thought you were sharing. I says this because it's burned me in the past. (long story involving a pretty tame book review that evolved into something else... wasn't pretty LOL)

Anyway, hopefully you'll get a response from them, this is just what I've picked up about big websites over the years.
Becca44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
starfish (06-26-2008)
Old 07-11-2008, 05:57 PM #10
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Cherie

I received a reply from the web manager at NMSS today regarding your question.

It's a two part reply as with anything it's not a simple question to answer.

I posed the question about broken links and sent the examples you gave me. Part of the problem is that a couple of the articles are on a server that the NMSS no longer has access to. They have changed providers twice since at least one of those articles was written.

They are in the process of upgrading again and the suggestion of adding a redirect for articles and information that is moved or archived has been added to the list of items they want from the new provider. It was a good idea.

In the meantime, they have upgraded and enhanced their search feature on their site which should improve the current capabilities to search for information.

However, that does not help with information that you currently have that is older links. The suggestion was to update your links about every 3 months or so. Or just make sure that if you provide information to advise that person that the exact link may be out of date and just direct them the to Home Page and to use the search feature with the subject.

I said I would find out for you and I did. The person I need to speak to was on vacation and got back to me as soon as possible.

__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Do you receive the NMSS Magazine - Momentum? tovaxin_lab_rat Multiple Sclerosis 3 05-25-2008 07:33 PM
NMSS: Win an Endless Pool BBS1951 Multiple Sclerosis 7 03-23-2008 01:20 AM
Houston - NMSS - Volunteers freeinhou The Stumble Inn 9 01-31-2008 09:55 AM
LDN Study Authorized by NMSS SallyC Multiple Sclerosis 11 11-21-2006 08:30 PM


All times are GMT -5. The time now is 07:33 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.