Sjorgren's??

Twinkletoes · 06-25-2008, 03:49 PM

That's great, Deji! So happy for your good news!

Thanks for sharing. Hope you get some help for those dry eyes.

Jan4you · 06-25-2008, 09:32 PM

Gosh I am sorry, I thought I responded to this post.

I have had severe dry eyes, getting worse over the years, the dry mouth that I blamed on meds. But when the MS doc's PA thought my new symptom of pain was fibro, I found a rheumatologist. She ran all kinds of tests but when she asked about dry mouth etc she said she thought it too might be Sjogren's. Even joined their forum.

Tests were NEG but since no one thinks I have MS either, she decided to treat me for Sjogren's as a "differential" DX even tho tests were not suppporting it. She told me I just had too much going on.

I was put on Plaquenil and Methotrexate which I hated. BUT found out Methotrexate stopped my SPASTICITY in my legs. What a treat. STiLL I didnt like the side effects so I was taken off of it. Then saw another Rheumy as she left her practice and he said I do not have Sjogren's without pos labs.

BUt.. he thought all my symptoms could be an autonomimc problem. Fact is the 2 neuro's I see didnt even read his letter. So I told the MS neuro who said I should see a cardiologist instead. AND again now thinks I do not have MS and now no Rheumy either.

So.. still a mystery. Hope you get relief. I found RESTASIS that the Rheumy put me on CREATED tears and now I hardly need it.

Try it, but it takes a prescripton.

Warmly, Jan

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