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Old 07-17-2008, 02:41 AM #1
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Dejibo, glad you are getting help and ideas from here. Sorry you do not have the results yet to decide about Copaxone and if it is working or not.
It sounds like you have 4 new lesions. Is that correct?

It is amazing how many other things can mimic MS. I am just beginning to appreciate this myself.

I am glad you have a doctor who is willing to fight the good fight. Hang in there.
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Old 07-17-2008, 08:22 AM #2
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Crazy

I have at least 4 new lesions. She didnt go on a old count vs new count with me, just wanted to point out that I had at least 2 enhanced ones.

My MS sx are a dropped left foot. hyper reflexes in my left leg. Positive babinksi reflex on the left. Periventricular lesions, MS hug, and Optic neuritis.

My sjogrens is THICK/dry skin. Painfully dry eyes, like my eye lids want to stick to my eye ball even with the plugs. very dry stools, not bad but dry mouth. rash prone sensitive skin that is taut and firm.

lets not forget my glioma! Now, I want to know, is this a true glioma? or is it a patch of inflammation? things that make ya go hmm.

I have found a couple of spots with message boards for sjogrens. I DO have it. the question is primary or secondary. If its primary, then my MS dx falls into question. If its secondary, tis because of the MS, and I get to keep both, lucky me.

This is just such a stressful, confusing time for me. I just want things to work the way they are supposed to work, and have an MD give a dx that sticks and fits.
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RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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Old 07-17-2008, 08:20 PM #3
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If Sjogren's is causing lesions like MS, then it is possible that what appears to be MS symptoms could indeed be related to Sjogren's? Do they fit in the Sjogren's list of symptoms?

Hope you hear from your doctors soon. Life can be too interesting at times.
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Old 07-21-2008, 10:35 AM #4
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Default what tests they use

ok, told you I would come back and correct the six sx of critera for the dx.

1. Occular (1 of 3)

Dry eyes for longer than 3 months.
Sensation of a foreign body in the eye
Use of artificial tears more than 3 times per day for longer than 3 months.

2. Oral sx (1 of 3)

Dry mouth for longer than 3 months
Swollen salivary glands
Need liquid to be able to swallow foods/pills

3. Occular testing (1 of 2)

Unanesthtized Schirmer test << 5mm/5min (they put strips in your eyes to measure tear flow
Vital eye staining. (a vegetable dye is added to your eye and they can see the dry spots on the cornea, or eye surface

4. Positive lip biopsy (focus score >>1/4mm2)

5. Oral tests (1 of 3)
Unstimulated salivary flow rate <<0.1 ml/min
Abnormal Parotid sialography
Abnormal salivary scintigraphy

6. Positive Anti SSA and/or SSB or ANA blood test.

As an auto immune, this SJS can attack the mylin as well as the joints, and the mucous production in glands. it can cause chirriosis of the liver, and pancreatitis, as well as inflammed joints, and severe dental disease due to lack of saliva to wash the teeth clean of bacteria.

Still no word yet on if I have primary, or secondary. I just want to wake up and find out this was a dream. That I am 20 again, and have all my life choices to make with the knowledge that I have earned today. boy would I change a few things.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



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Old 07-22-2008, 03:04 AM #5
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Sending you positive vibes for the best outcome possible. I'm not sure from reading your posts what that would be.

It seem either way, you've got a big challenge that you're facing. Please keep us posted.

Blessings,
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