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Old 06-27-2008, 10:47 AM #1
Dejibo's Avatar
Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default I need a cheerleader

I am frustrated!

I was told probable MS in 06 dx in o7 and started Beta. it was horrible for me. I had severely elevated liver enzymes. set clinic records. It was scary. I stopped and was placed on copaxone. I waited more than 2 weeks past the beta to give my whole body and liver a break. Started on Copaxone and had lots of issues from the start.

Lumps, bumps, itches, IPIR a few times. dull needles, plungers that wont push, sensitive skin. EXTREMELY dry eyes and skin since starting. I have the rare side effect of fatigue with it. I have just not been happy with it, BUT...I know that it is my only CRAB hope right now. I have been shooting everyday since 08/09/07.

My last MRI showed 2 new lesions and a glioma! I have had the glioma for about a year, but no one felt it worth mentioning since it was so small. Anyway, for the last few months, since my last flair, I have really had a motivational issue with taking my meds! I do take it everyday. its so rare that I skip. I did skip my burfday.

I need to get more motivated. Mental attitude is soooo important. I need to feel good about taking my meds! I am having an MRI on July 12, and that will determine if Copaxone is working for me. If I dont have any more lesions or probably if I do, we are going to try to rescue my copaxone relationship.

Can you help me find ways to get happier, more positive, and upbeat about taking this stuff? There are just too many days that I want to lay the needle down and go bared bottomed into the world of MS.

help me!
__________________
RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



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