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Old 06-27-2008, 11:25 AM #1
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The glioma does not seem to be very good news! Have they done a biopsy to be sure it is not just a MS lesion? Did you have lesions the first time, when they discovered the glioma (but didn't mention it)? Has it grown in the last year?

Have you had any relapses? Do you even know if you would be categorized as "Probable" RRMS or a more progressive type?

Has the MS dx been firmed up now, with the new lesions? Do you know if they were gad-enhanced lesions, or T1/T2?

There are a lot of us that can't take these meds, Dejibo. I have never taken them, and am doing ok. It sounds like you've given it your best shot (pun not intended).

July 12th is just around the corner now, so depending on how you've been doing (with relapses, etc) since starting C, I think I'd just stick to the program until after those results. You haven't been on C for very long either, and it does take time to kick in.

If all else fails, there's always LDN. It's helpful for cancer too . . .

Cherie
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Old 06-27-2008, 11:40 AM #2
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The glioma does not seem to be very good news! Have they done a biopsy to be sure it is not just a MS lesion? Did you have lesions the first time, when they discovered the glioma (but didn't mention it)? Has it grown in the last year?

Ditto what Cherie said...a glioma is nothing anyone competent would ever ignore, and it must be worked-up. Do you have the MRI report, and would you mind posting the text?


Cherie - there's not much chance of an MS plaque being mistaken for a glioma.
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Old 06-27-2008, 11:43 AM #3
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Cherie - there's not much chance of an MS plaque being mistaken for a glioma.


Thanks Rex.

Cherie
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Old 06-27-2008, 11:54 AM #4
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It's not a particularly reliable source, but according to Wiki"

"Gliomas are further categorized according to their grade, which is determined by pathologic evaluation of the tumor.

- Low-grade gliomas are well-differentiated (not anaplastic); these are benign and portend a better prognosis for the patient.
- High-grade gliomas are undifferentiated or anaplastic; these are malignant and carry a worse prognosis."

. . . "low-grade gliomas grow slowly, often over many years, and can be followed without treatment unless they grow and cause symptoms."

http://en.wikipedia.org/wiki/Glioma

How do they "evaluate" the tumor, Rex?

Cherie
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Old 06-27-2008, 12:02 PM #5
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How do they "evaluate" the tumor, Rex?
They remove it surgically and then do the pathology; a spinal cord tumor must come out. Then they may do post-operative radiation therapy.
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Old 06-27-2008, 12:08 PM #6
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They remove it surgically and then do the pathology; a spinal cord tumor must come out. Then they may do post-operative radiation therapy.
Thanks again. Thanks for coming here too, and sharing your expertise!!

I sent you another PM, BTW.

Dejibo, it sounds like the priority right now is getting that checked out.

Cherie
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