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Good Luck KERI Prayers are with you. :hug::hug:
Jappy |
Keri
Sending positive thoughts and prayers your way. Thanks for your courage. Please keep us posted. :hug:'s |
WooHoo...Good Luck Keri. I hope Chris is even close to right.
My Thoughts and...... http://byfiles.storage.live.com/y1pb...3teidd_yRQjoRU |
LOL
Chris is 100% right....why won't anyone but my doctors and those getting this done believe me? LOL |
:hug::hug::hug:
You are in my thoughts....and I'm sending good vibes your way....:hug::hug::hug: |
Sending you good thoughts and prayers. I hope it will be a success.
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I hope and pray that you keep getting better and better and prove all of us wonderers, wrong..:) |
No that is what I am trying to tell you all lol I HAD MS I HAD MS I HAD MS...past tense lol!
I have damage that is now repairing. The lesions are healing, the EDSS is going down, all my cognitive tests have improved, all my fatigue is gone. The brain has to compensate to learn how to do things the wrong way. When you see my video's you are watching in essence a toddler. No one recovers from MS with out learning how to live again. It is not something you are going to wake up one day and say "I can move like I did when I was 20!" I spent 4 years of shoving bad info into my brain and I need to rebuild muscles, and retrain connections how to do it again. I work out 5 days a week on my legs and upper body, do PT 2-3 times per week, and do occupational therapy 7 days a week. Recovering from MS is hard work. Guys Johns Hopkins has it figured out. I will probably be back to close to normal again within a couple of years. It just depends on how much axonal death I have. Once the body stops attacking itself it can repair the myelin damage. It can't repair dead nerves. There is a limit to how good I will get...maybe. Best thing is I do not have active MS anymore. It's gone. It may reactivate in 5-10 years but I will take the neurological function this restores for me. The I will go do it again if I reactivate. It's comparable to the flu for 3 days. The whole reason I am on Copaxone now is because in Mice with healthy immune systems, if they take Copaxone first, they cannot give the mice MS. It seems to act like a vaccine. In half of the people who did HiCy they would reactivate in 2 -4 years. Now with the healthy immune system we take it for the next year to retrain our immune system not to reactivate again. It has become the norm for all of us doing this now. I kid you not folks...I feel really strongly I need to worry more about what gas prices will be like in 2 years than what my health will be. This will be the new norm for MS and 79 other autoimmune diseases within the next 2 years. I just decided to get it done now because insurance is already covering it. I decided waiting to see how much worse I could end up rather than ending the disease was not the right thing to do for me. www.chrishadms.com |
I think I get it now, Chris....Thanks and good luck to you, for a total recovery. :)
It seems, like every other Therapy, that it's best to do this early in the game....before there is to much permanent nerve damage. I guess it's too late for me..Huh! :( I pray Red has the same results as You have had.:) |
The only way it is too late for anyone is for that person to say it is too late. There are people who have had this anywhere from 5-15 years doing this. I just don't think anyone with it longer has tried yet.
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