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Old 07-02-2008, 10:23 PM #1
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Default HiCy tomorrow (Thursday)

Hello everyone,

Just wanted to drop a quick note to say hello...and goodbye for now. Tomorrow I enter the hospital to start the HiCy (Revimmune) treatment. I am both excited and totally scared out of my mind. Not afraid of death (especially as there have been none with this treatment thus far) - just the whole idea of this process is mind-blowing. Then again, this whole MS thing has been rather mind-numbing to say the least.

In preparation for my upcoming hair loss, I had my hair cut short. Way short. However, the short is temporary, as baldness will soon follow. I bet at that point I will surely miss the short haircut! I do have a lovely wig though

Tomorrow morning I go to the hospital to have my central line (Hickman line) put in and then I get admitted.....and the first dose will be around 9-10pm........

So if anyone has any good/positive thoughts to send out toward Baltimore tomorrow - please feel free to do so!! I'll take all I can get (yeah, I'm being greedy with this one )

Hope everyone is doing well and continuing to fight the good fight (whatever the heck that means). I am the 26th person with MS to go through this process of HiCy at Hopkins...and I believe the most recently diagnosed. Hopefully the docs will continue to learn more about how to keep improving this treatment until it is a cure (or another cure comes around).

~Keri
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Old 07-02-2008, 10:36 PM #2
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Good luck Keri.

If you get a chance or have access, keep us posted on what you are up to! We'd all love to know how you are doing. If you want to have a point of contact, PM me or someone an email address or phone number. I can pass information along to other members.

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Old 07-02-2008, 10:38 PM #3
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Keri, I wish you all the best, you will be in my thoughts. Let us know, when you can, how your doing.
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Old 07-02-2008, 11:19 PM #4
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You have such courage to get your hair cut and buy a wig in preparation for this treatment. I hope and pray everything goes smoothly for you.

Keep us posted, K?
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Old 07-02-2008, 11:26 PM #5
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Extra positive thoughts for Keri in Baltimore!
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Old 07-03-2008, 12:29 AM #6
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good luck I see you did decide to go through with it congrats and hope its helpful, godspeed on your return to us bald or not
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Old 07-03-2008, 02:12 AM #7
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Big {{{hugs ))) for you! I wish you success and a great regenerated immune system!!
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Old 07-02-2008, 11:19 PM #8
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Keri, I'll be keeping you in my prayers for sure.
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Old 07-06-2008, 12:10 PM #9
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I found this and I would call it, a must read for anyone interested in the HiCy treatment.

Long, but so interesting......

http://www.hopkinsmedicine.org/hmn/W08/feature1.cfm
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Old 07-06-2008, 12:15 PM #10
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Hi Keri -- Good luck with your treatment. I will be thinking about you. I guess you must have finished the chemo already?? Check back and let us know how you are doing.
Hugs, Natalie
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