I met a woman who was the head nurse under the head of the CDC for the US government around 10 years ago. I forget her name and it was at a conference.

Anyhow

The head of the CDC- her boss- said to her and I quote, "The US government learned it's lesson from Polio and you will never see another disease cured again. You will only see them controlled. Polio cost billions in fees that could have been generated and now all the government will allow is controlled disease so the diseases can continue to make money."

Interesting theory, and maybe there is something to that.

We do know that animal studies with MS hardly ever pan out the same way in humans . . . how many times have I said I wish I was a mouse? ;). . . but maybe they will learn something more about the disease by trying.

The PreCISE trial, which measured the reduced for developing MS, with the early use of Copaxone for Clinically Isolated Syndrome (CIS), showed there was a reduction from 43% (on Placebo) to 25% (on Copaxone). In absolute numbers, that means a reduction of 18% of conversion to MS (with a 16% drop-out rate) . . . which really isn't all that great. However, perhaps combined with the HiCy, the odds will be better. :)

http://www.medicalnewstoday.com/articles/104462.php

Cherie

I saw that but as my docs also told me...If someone has CIS they already have shown signs of a whacked out immune system.

This is using Copaxone on a immune system that is brand new and not crazy (so they hope) just like it is in the mice.

My immune system is so new I need to have all my vaccinations again. We are hoping the Copaxone turns into just one of those.

Yeah, but if your immune system is no longer "whacked out", then Copaxone shouldn't even be necessary at all.

Based on his anology, maybe we should just put Copaxone in our water supply so that no one EVER gets MS. ;)

If the treatment didn't work for 23% of the people . . . we are now down to 7 that it did work (initially) for.

Then if this treatment, combined with using Copaxone after, worked for 50% of those people (3.5 ;)) over two years, we are talking about a very small number of people. I am assuming that at least some, if not most, are RRMS . . . so "remission" is the nature of the beast too (especially if the Copaxone is working for them), so it is IMPOSSIBLE to know if this treatment is "working" the way they hope it is.

The numbers are too small to draw conclusions . . . but that does not mean to say that it isn't potentially a good option.

There is no cure, YET, and nothing that can "promising to stop it for sure". I think you have to be very careful about suggesting otherwise.

BTW, you never answered about side-effects and risks . . .?

Cherie

:p I have OOMS

That's "On Occassion MS"

:D

Something caused the immune system to activate. It is just thought it will not reactivate with Copaxone there to help say, "No"! Some peoples immune systems have no reason to take Copaxone. It's healthy. The only way they would know if they person had MS would unfortunately was if they had issues. At least with this they believe if this is doe early enough they will have function restored and with the Copaxone it will become a PIA like light diabetes. Gotta watch it but thats it.

The folks who reactivated were retreated ad given Copaxone and they are farther than 2 years out now. If the original subjects can go 10 years (FDA cure criteria) without reactivating then this will be considered a viable "cure" option. We have about 5 years to wait for that. The only reason Dr. O'Donnel, Kerr, and Brodsky need to wait is for the FDA rules. They already know this cures SAA and MG and will say it very definitely as a "cure". You can ask them and they will all say they are pretty sure they have MS cured they just need to play the governments game now.

The side effect was I felt like I had drano and heroin put in me for 4 days. I was sick for 4 days. No fun at all. It was just like the flu. I woke up the day after I was released and the chemo was out of my system (4 days) and I was clear as a bell for the first time in my head in 20 years.

The biggest risk is a secondary infection during the 2 weeks after the chemo and waiting for the immune system numbers to come back. However the protocol doesn't allow you to put yourself at risk and you are on preventative Antibiotics, Antibacterials, and Anti-fungals for 2 weeks. I take a anti-bacterial till Sept then I am done with all meds but Copaxone.

I can't imagine how anyone could die from this unless they just ignored what the protocol says to do.

I found this and I would call it, a must read for anyone interested in the HiCy treatment.

Long, but so interesting......

http://www.hopkinsmedicine.org/hmn/W08/feature1.cfm

Chris, it can not be a cure, at least not for all of us.

2 people it didn't work at all for.

50% (assuming of the 7) were reactivated within 2 yrs.

That means about 30% have had no advancement in 5 yrs. That's about the same odds as the CRABs ALONE, and those people are on Copaxone.

Cherie

See...your data is skewed because of the small study. It looks way worse.

You can call JH and they will confirm this:

All 9 of the patients stopped progressing over the 2 years even though some of them did need to be retreated. 7 of the 9 over the 2 years improved in all MS testings. The 2 that didn't improve, but got no worse, were late SPMS /PPMS. ( I hate those terms)

All 9 in that first trial stabilized, some after retreating. 7 of the 9 folks got better to some degree. Most were EDSS of 6 and after 2 years were close to a 3. They learned a valuable lesson about axonal death and neutrophils and the correlation with MS cells because of two of the folk who needed to be retreated in this trial.

Unless you two don't want to be confused with facts.....read the link, I posted..:D