Hi Mark,

Welcome to our gang, but sorry to hear about the dx.

I wonder if you wouldn't mind telling us what type of pain you are suffering from, how long you've had it, and any effects, ie. clawing, etc.?

I had terrible sensory pain for several years, and nothing I took touched it. The way I understand it, it is like a "phantom" pain (lack of a better word), so pain killers have nothing to "fix".

The other MS pain I have suffered with is spasticity, and that too went on for years. It had actually gotten to the point where my limbs were curling in a fetal position and I had to use braces to keep them straight. The braces did actually did help the pain, somewhat . . .

I started on LDN (Low Dose Naltrexone), which is a NON-mainstream drug that many MS'ers are now trying in an attempt to slow progression/reduce relapses/reduce symptoms. Of course it doesn't work as well for everyone, but it has been a miracle for me; I have only had a few days of (far less) pain in the last 17 months since starting on this drug.

That is the ONLY drug I take for MS now, and I am doing very well. I sure hate to see how many drugs you are on; it would be almost impossible to figure out which symptoms you have are actually CAUSED by some of these drugs.

Tell us more about your history, etc., if you don't mind? Are you still dx with Reflex Sympathetic Dystrophy too then?

Cherie