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Old 07-08-2008, 10:53 AM #11
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Sending prayers your way..
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Old 07-08-2008, 11:47 AM #12
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Feel better soon, Friend. You're in my prayers.
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Old 07-08-2008, 04:39 PM #13
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dadgum ms gets better when it gets good and ready !!

how about a scooter or power chair? i made my call just the other day. i figure why not conserve my energy and insure my saftey as well? cooling vest is another must have in the summer too. ms and summer just suck period however i have decided to make the most of it..........i hope things turn around for you soon
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Old 07-08-2008, 09:57 PM #14
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Default Thank you all,

The fact that there are so many of you who truly CARE... thank you for your thoughts and prayers. It does make a big difference with my state of mind.

It's actually tomorrow, Wednesday, and Thursday that we go. Tomorrow is a long day. We have the wchair. So I know this is the right thing to do. It's not really a choice at this point. Can't hardly walk to next room, muc h less across college campus.

You all help to make me brave. It is a really HUGE step. Wish I could say more, but can't hardly type.

I LOVE YOU ALL (TEARS...)
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Old 07-08-2008, 10:26 PM #15
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Friend - Sorry I am coming in to this late. I am glad you opted to get the w/c. It will make the orientation more enjoyable for you as well as DD. (Well, as much as an orientation can be enjoyable. LOL). And, you are getting a free ride and your seating is taken care of! How cool is that?

As others mentioned, I would call the neuro and let him know the oral steroids aren't doing anything for you. I can't remember what issues you were having with this flare. I do know, from my own experiences, that spinal flares take what seems like forever to go away but generally up to 8 weeks for me. Is that possibly what is happening to you?

As for tomorrow, try to put as much out of your mind as possible and focus on DD. Try to make the day about her as much as you can. I know this is very difficult to do and as moms with MS we have to force it but the our kids appreciate it so much when we do that for them.

Pack snacks, ice packs, and lots of water and have a great time. Let us know how it all turns out.
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Old 07-09-2008, 05:42 AM #16
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Friend - how are you doing? Just wanted to let you know I was thinking of you. I hope today and tomorrow go well for you! Keep us posted.
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Old 07-09-2008, 07:30 AM #17
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good luck today and tomorrow friend

peace
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Old 07-11-2008, 06:57 PM #18
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Default update...

my dd had a great day... i made it wed in the wc. but dh went with dd without me on day 2. so glad i made it day one and got to be a part of it.

i go tuesday to see my neuro. not sure what my options are. what do i do, just ride it out and either it will or won't get better? i'm very scared. have completely lost all use of left side o body. just keep getting worse.

hubby is doing good job caring for me. but it's suppose to be me taking care of him. i just want to keep saying i'm sorry,

i feel bad for my 16 yr old son. he and 18 yr old daughter re worried and should not have to be going thru this. it is not fair.

i know i'm whining...sorry...
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Old 07-11-2008, 07:37 PM #19
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Friend - I am so glad you had a good day going to the orientation.

Whine all you want. It is OK. Let you DH take care of you for now. Once you are back up and running it will be your turn to take care of him. I am sure he wants to do things for you right now. I am sure DS and DD want to also. Allow them to do things for you as well. Honestly, it will make them feel better as well.

DD18 and DD16 have learned quite a bit in the past few years and it's OK. I was like you at 1st but since I'm a single mom (DBF and I don't live together) and there have been a few times, much to my horror as well as theirs, that they have had to help me in and out of the tub. (I think DBF would enjoy it far more than DDs lol)

There are times when they have give me massages to work out the back spasms, help me walk, etc. I do, however, encourage them to be teens too and I know they appreciate that. So they have to massage my spastic muscles before going to the movies with their friends. That is OK.

I do hope you feel better soon. It is scary to have these crazy things but you are not alone in this crazy stuff. We are all here with you and for you. Sending good vibes, prayers, and gentle right-sided cyber's.
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Old 07-11-2008, 09:28 PM #20
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Dear sweetie,
I am glad you were able to attend some of your DD's orientation. Try your best to allow your DH to assist you. That's one of the benefits of being together--we get to help one another when it's needed.
I hope, also, that your neuro can help you with these debilitating sxs...please keep us informed...we're praying for you.
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Last edited by Debbie D; 07-11-2008 at 09:28 PM. Reason: spelling error
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