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#1 | ||
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Junior Member
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On Monday I meet with Baxtor Pharmaceuticals, Accentia, and Johns Hopkins to try to nail down 30 million dollars to start doing Revimmune as a common MS treatment starting ASAP across the nation.
If you have a MRI with any activity in it you need to call: Carrie Trecker Johns Hopkins Hospital 600 N. Wolfe St., Meyer 113 Baltimore, MD 21287 Phone: (410) 502-2574 Fax: (410) 614-1530 Rush University Medical Center 1653 W. Congress Parkway Chicago, IL 60612 Phone: (312) 942-8011 [MS Center direct] I am done posting on this site and will continue my progress reports To those of you who are happy to have MS and want to fill others with gloom and doom about why everything can't work and why nothing can. Congradulations...you are right! Now I am sorry but that is condescending and you know who you are, that is directed too. Last edited by Curious; 07-07-2008 at 02:00 PM. Reason: edit required per nt guidlines |
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#2 | ||
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Senior Member
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I wish you the best of luck with the treatment.
-Vic |
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#3 | |||
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Magnate
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Quote:
However, your statement went a bit far, IMO. You are now putting people down if they have a different opinion and do not believe what you believe. I find that totally unacceptable. I do not do the doom and gloom thing, it's a waste of energy. I also don't fill anyone with doom and gloom but I do tend to tell it like it is as many here will. Not a single person I know is happy about MS and we live our lives to the best of our ability. We make the decisions and choices we feel are best for us, they might be different than yours but NO ONE is wrong in the choices they make with this disease. |
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"Thanks for this!" says: | barb02 (07-07-2008), ewizabeth (07-07-2008), kicker (07-08-2008), Natalie8 (07-07-2008), SallyC (07-07-2008), SandyC (07-08-2008), starfish (07-07-2008), suzyqz_2007 (07-07-2008), tovaxin_lab_rat (07-07-2008), wkikta (07-07-2008) |
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#4 | |||
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Member
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I agree 100% with Snoopy.
But I will still wish you the best of luck with your treatment.
__________________
. Dx'd RRMS July 2007 |
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"Thanks for this!" says: | SandyC (07-08-2008) |
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#5 | |||
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Elder
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Chris,
I was just at another site and you said you were done with NT. What's the story? Isn't it a bit immature to act this way just because everybody doesn't agree with you? You're obviously excited about your results but there's no reason to act this way. ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: |
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#6 | |||
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Elder
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I'm trying to imagine what's in the mind of a person who would accuse someone else of being "happy" to have MS.
__________________
* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: | ewizabeth (07-07-2008), SallyC (07-07-2008), SandyC (07-08-2008), starfish (07-07-2008), suzyqz_2007 (07-07-2008) |
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#7 | |||
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Magnate
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Welp, best of luck to you! I seriously mean it. I need to stick with what the Dr. and insurance company says I can have.
__________________
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"Thanks for this!" says: |
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#8 | |||
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Elder
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Quote:
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__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | ewizabeth (07-07-2008), suzyqz_2007 (07-07-2008) |
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#9 | |||
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Wise Elder
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HEY!!!!!! I take offense to that statement of doom and gloom! I just posted a happy thread dagnabit!
![]() BTW, good luck with your project and outcome even if you are being a tad condensending. Maybe they will come up with another treatment out there for those who assume they know how one should treat themselves when sick? ![]() PS: Please tell Baxter, Accentia and John we all said hello!
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: |
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#10 | ||
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Member
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Gee whiz, If I was 33 and meeting with folks to raise 30 million dollars, I think my head might swell a little. I just saw this after responding to the other post.
If we can respect his choice, he should be respecting our choices. After all, this program is only being done at one place, and there are 400,000 folks in this country with MS. |
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