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Old 07-07-2008, 07:20 PM #1
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4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
Posts: 164
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4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
Posts: 164
15 yr Member
Default I need some feedback on this specific Ty issue!

Okay, I've now completed four infusions. The last two have been awful! I get through the first hour fine, the nurse comes in and removes the med, and it is my hour watch time.

I get the same flu-like symptoms I got when I first started Avonex! I get chills, headachey, and achy all over. My temp goes up one degree, and this last horribly for about a half hour.

The nurse cracked up today when I showed up in 95 degree weather with sweat pants, a warm blanket, fuzzy socks with Birkenstocks. She realized why when I started with the chills. They brought me some camomille tea (awful stuff by the way!) to help warm me up. After a half hour the chills stop.

I don't pre-medicate, but I'm sure that will be changing.

Now it is 4 hours after the infusion and I still feel a little achy. Anyone else get flu-like sxs??
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