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Old 07-09-2008, 05:14 PM #1
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Hugs to you Char!

I like the a/c (55-60) thing! I have the same system in my car!

It's hard to figure out WHAT to wear and bring these days! We went from cool to unbearable. I heard it's supposed to break tomorrow. I am praying!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
yeahbut (07-09-2008)
Old 07-09-2008, 06:39 PM #2
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Quote:
Originally Posted by Riverwild View Post
It's hard to figure out WHAT to wear and bring these days! We went from cool to unbearable. I heard it's supposed to break tomorrow. I am praying!
me too!!!

I have the shirt in my car ready to travel where I go!!

Preppy..... far from that I hope!!
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Old 07-09-2008, 06:46 PM #3
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MS does strange things to our senses. I must have a/c now and too we run a fan pushing the cool air from one room to the next. I cannot have the fan blowing on me for it makes my joints ache.

As well, too cold a room makes my joints hurt as does winter's cold air hitting my pants affecting my hips, knees and ankles. A minutes sun makes my skin burn now. Hang in there!
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Old 07-09-2008, 08:52 PM #4
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Default heat temperature-sensitivity

http://www.nationalmssociety.org/abo...ity/index.aspx

Many people with MS experience a temporary worsening of their symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths. For example, some people notice that their vision becomes blurred when they get overheated—a phenomenon known as Uhthoff's sign. These temporary changes can result from even a very slight elevation in core body temperature (one-quarter to one-half of a degree) because an elevated temperature further impairs the ability of a demyelinated nerve to conduct electrical impulses.
The ‘Hot Bath’ Test Used for Years to Diagnose MS

For many years, the “Hot Bath” test was used to diagnose MS. A person suspected of having MS was immersed in a hot tub of water, and the appearance of neurologic symptoms or their worsening was taken as evidence that the person had MS.
Heat-Related Symptoms are Temporary

It is important to remember that heat generally produces only temporary worsening of symptoms and does not cause more disease activity (demyelination or damage to the nerves themselves). The symptoms are generally rapidly reversed when the source of increased temperature is removed. People with MS who are planning to move to a very warm climate should try to visit first; plans may have to be changed if the weather seriously worsens MS symptoms.
Strategies for Easing the Effects of Heat

* Stay in an air-conditioned environment during periods of extreme heat and humidity. [If an air conditioner is needed to help minimize the symptoms of MS, the cost of this equipment may be tax deductible if the physician has written a prescription for it.]
* Use cooling products (vests, neck wraps, bandanas, etc.) during exercise or outdoor activity, or pre- and post-cool.
* Wear lightweight, loose, “breathe-able” clothing.
* Icy drinks such as “slurpees” or popsicles can provide temporary relief.
* Use an oscillating fan during indoor exercise.
* Exercise in a cool pool (<85 degrees).

Cold Can Also Be a Problem

Some people with MS notice that symptoms, particularly spasticity, become worse in cold weather. It is generally recommended that people with MS who are sensitive to temperature try to avoid extremes of either hot or cold, and that people who are considering a move to a "better" climate try to visit first to see if the climate change is, indeed, beneficial.
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