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Old 07-11-2008, 12:10 PM #11
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Jim has this Kelly. You can't really see it but if you place your hand on the part where it's happening you can feel the jerking. Jim's spinal doctor said it's what RW's doctor said plus the nerve endings. The signal is not being sent correctly which causes the jerking feel. Jim also has clonus and that is more irritating to him because you not only feel it, you see it too. He started taking zanax and that seemed to help. We are currently weening off gaba with no problems. I hope you find something that helps it go away.
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Old 07-11-2008, 01:30 PM #12
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Originally Posted by herekitty1960 View Post
I know....I have a friend with ALS and he has this problem in his arm. It's very noticeable, though. Mine you cannot see but I can feel it.

That was the first thing I thought of, too.

When mine is acting up, you can actually see it through my clothes. It is kind of an amusing party trick now that I know I don't have ALS.
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Old 07-11-2008, 01:39 PM #13
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When mine is acting up, you can actually see it through my clothes. It is kind of an amusing party trick now that I know I don't have ALS.
Jim does that with his eyes to ammuse others. It's also a great conversation ender when too many questions are being asked.
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Old 07-13-2008, 01:59 PM #14
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Jim does that with his eyes to ammuse others. It's also a great conversation ender when too many questions are being asked.
Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.
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Old 07-13-2008, 02:07 PM #15
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Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.

Yep he can too!
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Old 07-13-2008, 02:09 PM #16
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Can he make his eyes do it at will? I can, too! What a strange talent to have, huh? I could do this about 3 years ago and then it got better and now it is happening again.
I was just reading this and now my right eye is twitching....I kid you not..
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Old 07-13-2008, 03:31 PM #17
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yes Kelly i get that too its annoying to say the least, recently i posted about those its like a race track first turn is my rt shoulder then my hand next turn my leg ...... i upped my dosage of klonopin it seems to help some

lately am begining to wonder if the SX are not that bad, tired of all the pills i take

I hope it settles down for you real soon, seemed to me the more stress i had, the more turns there were in the race track, so to say
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Old 07-13-2008, 03:39 PM #18
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I was just reading this and now my right eye is twitching....I kid you not..

Copy cat................
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