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Old 07-22-2008, 07:42 PM #61
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Default Tovaxin News
http://www.marketwatch.com/news/stor...1%7D&dist=hppr

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Opexa Conducts Additional Analysis on Phase I/II Extension Study with Tovaxin(R) for Multiple Sclerosis
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Old 07-22-2008, 08:00 PM #62
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Quote:
Originally Posted by Av8rgirl View Post
I don't know if I'm reading something wrong or what, but it looks like, not producing MRTCs is a good thing. Can that mean, you're cured?
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Old 07-22-2008, 09:12 PM #63
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Default Long answer to a short post!
I am not sure Sally. I don't think so, but it does mean that IF I am receiving the real stuff, it is working. Since I am in the double blind study and haven't been unblinded, I have no way of knowing if I was in the placebo group of the vaccine group. 100 received vaccine, 50 received placebo.

At some point, you revert back to producing MRTCs again. Where that point is, no one knows. And at what point you stop producing is also unknown, at least for me it is. That information hasn't been released yet.

I will be retested again on Sept 24th for MRTCs which would be 367 days since my last vaccine. Since my last vaccine, I have had 2 exacerbations; one infection induced (that horrible sinus infection I had last December) and one not.

Since I have started the trial, March of '07, I have had a total of 3 exacerbations. 2 treated with IVSM. That in and of itself is a huge statistic for me. Prior to that, I had 3, sometimes 4, exacerbations a year tx'd with IVSM.

I can't get back into the extension study until I produce those MRTCs again so they can make the vaccine for me.

I am not cured, just fewer exacerbations. I do however still have symptoms...fatigue and lots of pain. That has not gone away.
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Old 10-16-2008, 02:35 PM #64
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Another update.

I had my 3rd blood draw on 9/26 to see if I am producing the myelin reactive t-cells so they can make the vaccine.

I received a phone call today informing me that I am still t-cell negative.

My next appt is Jan 6th.

Either this stuff is working very well or I have completely converted to B-cell production which someone mentioned.

I am totally befuddled and concerned...
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Old 10-16-2008, 02:55 PM #65
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Quote:
Originally Posted by Av8rgirl View Post
Another update.

I had my 3rd blood draw on 9/26 to see if I am producing the myelin reactive t-cells so they can make the vaccine.

I received a phone call today informing me that I am still t-cell negative.

My next appt is Jan 6th.

Either this stuff is working very well or I have completely converted to B-cell production which someone mentioned.

I am totally befuddled and concerned...
Sheesh, Cheryl, I'm befuddled too... How do you feel? Do you feel like the dang stuff is working to halt your MS progression, or not??

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Old 10-16-2008, 06:09 PM #66
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Sheesh, Cheryl, I'm befuddled too... How do you feel? Do you feel like the dang stuff is working to halt your MS progression, or not??
Sally...I don't know.
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Old 10-16-2008, 07:27 PM #67
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Hang in there! I think it's it's working!
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Old 10-16-2008, 07:41 PM #68
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Quote:
Originally Posted by Riverwild View Post


Hang in there! I think it's it's working!
Yeah, Me too..
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Old 10-16-2008, 08:22 PM #69
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I also think it's working Cheryl! It might be a very good thing that you aren't producing the MRTC's.
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Old 10-17-2008, 10:38 AM #70
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I hope it goes well, Cheryl.

On a side note, enjoy the score-fest tonight at the Boise State game.

Da' Warriors will be in trouble on the Smurf Turf.

-Vic
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