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Old 08-07-2008, 02:12 PM #21
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JoeMac JoeMac is offline
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Join Date: Feb 2008
Location: Erie, Pa
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JoeMac JoeMac is offline
Member
JoeMac's Avatar
 
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
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Hi Cherie,

I had to go back into the hospital because of panceatitus, was disharged yesterday........I am feeling NO better from this flare up.........no I didn't get the IVIG, neuro wants me on Tysabri and am currently in the screening process for that, I hope to get on it soon........you say I am about at the turning point huh?......Oh how I wish I was in the recovery phase right now this is really getting to me to the point that I have asked my PCP for some anxiety meds to get me through it.........

I still feel horrible but not as bad as I did with the pancreatitus........They did tell me that it MAY have been the Rebif that caused THAT........

My right hand is just about useless and my left isn't far behind.........this is horrible........:-(

Thanks for keeping me going Cherie, it really IS helping.......:-)

Joe

Quote:
Originally Posted by lady_express_44 View Post
Hi Joe,

You are getting closer to the turning point, as I check off the days on a calendar for you.

I have been talking off-line with another lady who is currently going through this exact experience. She is about 3 - 4 weeks ahead of you, but she turned the corner to the "recovery phase" and is starting to feel considerably better.

Just a few more weeks till the worst is over . . .

BTW, did you go on IVIG?

Cherie
__________________
Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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