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Old 08-12-2008, 04:58 PM #1
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Good Luck with your LDN!!! I started low also and slowly ramped up to 3 mg. Any higher made for very stiff legs, so this is where I'll stay! That was the only side effect for me.

Be sure to keep us posted!!!!!
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Old 08-14-2008, 04:09 PM #2
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curious about something if I may ask a few of you same question, how long after taking the LDN did you start to notice a change, at the present time i stopped the other meds first and my spasm and muscle spasicicity was starting to build, being off the other meds yet now i am noticing they are not as sore this past two days or so the spasm in my neck are not as often, and i got energy, now here is my dilemma was it the other meds making me tired or LDn making me less tired, could side effects from other meds mess with my muscles or is LDN working i am so confused ok more so than normally
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Old 08-14-2008, 05:47 PM #3
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Yes, It's the LDN..

I noticed the difference, the first day....I thought it was just placibo, but it lasted. Apparently the small dose is working on you...I'm surprised, but delighted.

The energy and lack of Fatigueness is due to the small increase in indorphins, I think. PwMS are usually very low in indorphins.

Keep up the good work, Franky .

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Originally Posted by weegot5kiz View Post
curious about something if I may ask a few of you same question, how long after taking the LDN did you start to notice a change, at the present time i stopped the other meds first and my spasm and muscle spasicicity was starting to build, being off the other meds yet now i am noticing they are not as sore this past two days or so the spasm in my neck are not as often, and i got energy, now here is my dilemma was it the other meds making me tired or LDn making me less tired, could side effects from other meds mess with my muscles or is LDN working i am so confused ok more so than normally
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Old 08-14-2008, 07:55 PM #4
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Quote:
Originally Posted by weegot5kiz View Post
curious about something if I may ask a few of you same question, how long after taking the LDN did you start to notice a change, at the present time i stopped the other meds first and my spasm and muscle spasicicity was starting to build, being off the other meds yet now i am noticing they are not as sore this past two days or so the spasm in my neck are not as often, and i got energy, now here is my dilemma was it the other meds making me tired or LDn making me less tired, could side effects from other meds mess with my muscles or is LDN working i am so confused ok more so than normally
I noticed a BIG difference in my spasticity pain almost immediately (within a few days), but I was on 3.0 mg from the beginning too. I had suffered with that pain, to the point that I had to wear braces on my limbs every night and many days, for almost 2 yrs. I have only had to use one brace, once, since I started on LDN.

It could be either thing that's helping you, Frank; going off other meds OR going on LDN. I waited several months to try weaning off Celexa because I wanted to know which drug was helping/hurting. Ultimately, I knew it was LDN that helped with certain things, and Celexa that caused me other side-effects.

After you've stabilized at 3.0mg or 4.5mg, you can try stopping it for a few days to see.

Cherie
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Old 09-06-2008, 03:59 PM #5
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I was wondering if those taking LDN for MS take any additional supplements, vitamins, or minerals. I read DL-Phenylalanine complements LDN by keeping the endorphins elevated during the day.
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Old 09-06-2008, 05:32 PM #6
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had not heard about that, thanks Tree, will have to look this up or discuss it with nero the neuro
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Old 09-06-2008, 06:49 PM #7
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Quote:
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I was wondering if those taking LDN for MS take any additional supplements, vitamins, or minerals. I read DL-Phenylalanine complements LDN by keeping the endorphins elevated during the day.
I couldn't take DLP....Something about it raising your blood pressure.. It's been so long, I forget, but I remember, I couldn't take it.
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Old 09-06-2008, 07:13 PM #8
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Brenda, who has been taking LDN for a long time (and whose mom takes it for breast cancer), has mentioned that Dr B recommends DL-P as a "pick-me-up". There are all sorts of warnings about it; people (with high blood pressure, etc.) who should not consider the use of it, so research is important before jumping on.

You might want to read more on the attached links:

http://www.freewebs.com/lovelaugh/dlphenylalanine.htm

http://ldn.proboards3.com/index.cgi?...play&thread=96

I know Brenda talks a lot about testing for yeast and the use of acidophilis too (which I do use, occasionally), but I haven't tried DL-P. Maybe I should, cause fatigue is still a factor for me . . .

Cherie

BTW, I like knowing that LDN has the potential to ward off cancers too.
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Old 09-06-2008, 11:06 PM #9
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I take B1 - 100 MG with my LDN 3.0 every day; sometimes I'll add a 400 of MAG, but that's IT
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