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Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105

That's wonderful news, SL!! Congratulations! :)

Question Regarding Spasticity

I've been on the 3.0 dosage now for 4 days. I've noticed an increase in spasticity in my right leg. Should I just tough it out and wait for it to pass or do you think I should reduce my dosage back to 1.5? I hate to go back to a lower dose because it seems to be helping other aspects of my MS.

Quote:

Originally Posted by LarryLDN (Post 362098)

I'm primarily on dailystrength nowadays, I have my own LDN group, http://dailystrength.org/groups/ldn and keep a SNIPS archive group there too http://dailystrength.org/groups/daily-snips-archives

My dad is on LDN 528 days and doing AWESOME, 1969 for me.

Just got back from 7 Bluegrass Festivals event weeks since June.

Hi Larry! Thank you for the link to the website. I checked it out and it's very informative.

What wonderful news, SL. I'm very happy for you.

Quote:

Originally Posted by herekitty1960 (Post 362137)

Symptoms like this might stir up for a few weeks, Kelly, but I'd give it a few weeks to see what happens.

When I happened to try to move up the first time, in late Sept (3.0 mg to 4.5 mg), I couldn't do it because of the recent change in weather. I waited about a month and tried again, with no problem.

I've also mentioned that I have to drop down from 4.5mg to about 3.75mg at this time of year, EVERY year, because the weather starts to turn colder and my spasticity acts up anyway. I haven't dropped down yet, but will probably have to in the next few weeks. Once my body adapts to cold, I can go back up.

I'm thinking this is likely just transient, and one of the initial side-effects. If it's not too bad, then I'd suggest to keep plugging away at 3.0mg to see if it levels off. If it doesn't, you could drop down for a few weeks, wait till you've adapted to the weather, and try again.

Cherie

Quote:

Originally Posted by SilverLining (Post 362107)

Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105

Well that's cool! :)

My neuro doesn't even bother with MRIs any more. :p

No doubt your neuro knows what you are up to, but is still trying to play the denial game. My (ex) neuro did that for a year too, and then he started rxing it to anyone who asked for it.

Cherie

Thanks, Cherie. It's not bad and subsides after I've been up for a while so I think I'll just wait it out and continue with the dosage I'm on now (3.0). It's usually just first thing in the morning and once I move around a bit I loosen up.

The extra energy I have is wonderful. It's so nice just to feel good again...:)

Quote:

Originally Posted by SilverLining (Post 362107)

Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105

Thanks for putting the link here, to your wonderful LDN success story. Congrats..:hug::hug::hug:

Larry, I know you must getting tired of repeating it, but, please tell us a little more about, how you are doing, at this point in your LDN experience.

We went on LDN about the same time and I know, your experience has been even better than mine..:)

Thanks..:hug:

P.S. Hows your life going now and your new Home and stuff?