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Old 09-05-2008, 01:56 AM #301
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Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105
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Old 09-05-2008, 04:23 AM #302
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That's wonderful news, SL!! Congratulations!
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Old 09-05-2008, 04:26 AM #303
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Default Question Regarding Spasticity

I've been on the 3.0 dosage now for 4 days. I've noticed an increase in spasticity in my right leg. Should I just tough it out and wait for it to pass or do you think I should reduce my dosage back to 1.5? I hate to go back to a lower dose because it seems to be helping other aspects of my MS.
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Old 09-05-2008, 07:35 AM #304
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Quote:
Originally Posted by LarryLDN View Post
I'm primarily on dailystrength nowadays, I have my own LDN group, http://dailystrength.org/groups/ldn and keep a SNIPS archive group there too http://dailystrength.org/groups/daily-snips-archives

My dad is on LDN 528 days and doing AWESOME, 1969 for me.

Just got back from 7 Bluegrass Festivals event weeks since June.
Hi Larry! Thank you for the link to the website. I checked it out and it's very informative.
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Old 09-05-2008, 09:36 AM #305
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What wonderful news, SL. I'm very happy for you.
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Old 09-05-2008, 11:26 AM #306
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Originally Posted by herekitty1960 View Post
I've been on the 3.0 dosage now for 4 days. I've noticed an increase in spasticity in my right leg. Should I just tough it out and wait for it to pass or do you think I should reduce my dosage back to 1.5? I hate to go back to a lower dose because it seems to be helping other aspects of my MS.
Symptoms like this might stir up for a few weeks, Kelly, but I'd give it a few weeks to see what happens.

When I happened to try to move up the first time, in late Sept (3.0 mg to 4.5 mg), I couldn't do it because of the recent change in weather. I waited about a month and tried again, with no problem.

I've also mentioned that I have to drop down from 4.5mg to about 3.75mg at this time of year, EVERY year, because the weather starts to turn colder and my spasticity acts up anyway. I haven't dropped down yet, but will probably have to in the next few weeks. Once my body adapts to cold, I can go back up.

I'm thinking this is likely just transient, and one of the initial side-effects. If it's not too bad, then I'd suggest to keep plugging away at 3.0mg to see if it levels off. If it doesn't, you could drop down for a few weeks, wait till you've adapted to the weather, and try again.

Cherie
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Old 09-05-2008, 11:29 AM #307
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Originally Posted by SilverLining View Post
Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105
Well that's cool!

My neuro doesn't even bother with MRIs any more.

No doubt your neuro knows what you are up to, but is still trying to play the denial game. My (ex) neuro did that for a year too, and then he started rxing it to anyone who asked for it.

Cherie
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Old 09-05-2008, 11:31 AM #308
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Thanks, Cherie. It's not bad and subsides after I've been up for a while so I think I'll just wait it out and continue with the dosage I'm on now (3.0). It's usually just first thing in the morning and once I move around a bit I loosen up.

The extra energy I have is wonderful. It's so nice just to feel good again...
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Old 09-05-2008, 11:56 AM #309
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Quote:
Originally Posted by SilverLining View Post
Follow up MRI after 9 months on LDN, sorry I didn't catch up in the thread I only have a minute but wanted to make sure you guys saw this post.

http://neurotalk.psychcentral.com/sh...105#post362105
Thanks for putting the link here, to your wonderful LDN success story. Congrats..
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Old 09-05-2008, 12:06 PM #310
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Larry, I know you must getting tired of repeating it, but, please tell us a little more about, how you are doing, at this point in your LDN experience.

We went on LDN about the same time and I know, your experience has been even better than mine..

Thanks..

P.S. Hows your life going now and your new Home and stuff?
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