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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

Kitty 09-21-2008 10:20 AM

Quote:

Originally Posted by weegot5kiz (Post 372796)
I agree Kelly about the side effects from this are pttttfff nothing compared to the 5 pills I stopped, and it has a better chance of slowly then anything out there i like 3/5 type of odds better than 1/3:Ponder:


I know.....I stopped taking several and think that in itself made me feel better. No doubt, the stuff that's supposed to help us feel better sometimes ends up making us feel worse. :Sigh:

I know what you mean about sleep, Frank.....sometimes even though I know I need it if I'm awake it seems pointless to just lay there hoping to go back to sleep eventually. I'm too antsy for that! Since I know I can always take a nap or at lest rest during the day if I need to I don't stress about when I get my sleep too much. If I had an 8-5 job I'd be pullin' my hair out! :eek:

SallyC 09-21-2008 07:55 PM

Well, all I can say is, I sure am glad I had my LDN and Prozac, through this past week.:eek: I don't think I would have made it, without both..:p

Nice to see most of you doing so well. (((((((Frank)))))))..hang in there.:hug: You too..(((((((Twink))))))) :hug:

:grouphug:

weegot5kiz 09-21-2008 09:12 PM

nice to see your pretty smile on this post again Sal, glad you are ok:hug:

marion06095 09-22-2008 07:35 AM

Yaaaaaay!!

We've got our Sally back!!!

Kitty 09-23-2008 08:13 AM

I have a 1 PM phone consult appointment with the doc today....I've been on LDN since 8/25 and the 3.0 dosage since 9/01. I'm hoping he tells me it's okay to bump up to the 4.5 mg. I am nursing a sinus infection and on an antibiotic so he might tell me to wait until the medication is finished.

I like the 1.5 mg. tablets because it gives me the option of taking 3.0 or 4.5 easily.

I need to write my questions down or I'll surely forget them! :o

weegot5kiz 09-23-2008 10:47 AM

well its tues and every day since i went back down to 1.5 i ahve been p early no jet lag, more energy, me thinks .5 is gonna be my dose for some time

everyone I hope your week is going well so far

cherie are you ok? how you been hope you are doing well:hug:

SallyC 09-23-2008 11:23 AM

I'm surprised that 1.5mg helps you at all, but LDN amazes me anyway, so, great, Frank, I hope this is your dose. you can always try to go up, later.

I started at 3 and didn't go up to 4.5mg for a couple of years.

:hug:

Quote:

Originally Posted by weegot5kiz (Post 374459)
well its tues and every day since i went back down to 1.5 i ahve been p early no jet lag, more energy, me thinks .5 is gonna be my dose for some time

everyone I hope your week is going well so far

cherie are you ok? how you been hope you are doing well:hug:


tante 09-23-2008 01:26 PM

I'm getting in on this late, but I, a "Biffer" as well, have now been on LDN for close to two months, and, like Sally, it amazes me also.

My neuro, bless him, rxed it and completely surprised me. I was still accumulating information, and researching the suppressant v modulator status of the interferons as related to LDN, planning a full court press in the future.

Turns out a different pt. of his already had quite some time ago, and after doing his own investigation, he has been prescribing ever since to great effect.

Early on, with one rather bizarre improvement, I was certain it was a placebo effect, then slowly, I have also seen tasking improvement and I have cut Provigil use in 1/2.

This is my close to miracle drug. I still take my immunomodulating
interferon, but if I ever have to quit that....well....I won't shed as many tears.

barb02 09-23-2008 01:40 PM

I did not realize that you could take an interferon with LDN. I did know that copaxone and LDN were ok.

SallyC 09-23-2008 02:12 PM

Quote:

Originally Posted by barb02 (Post 374568)
I did not realize that you could take an interferon with LDN. I did know that copaxone and LDN were ok.

It's not recommended, but, has been done, by some, with success???


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