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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

SallyC 07-26-2008 06:49 PM

Quote:

Originally Posted by Bearygood (Post 332372)
Serious question...how would you define excess? I would say that a few times a year I make up for that drink I don't have every day! :eek:

I really have been curious about this.

I've done that on a rare occasion (since MS) and have had no ill effects, but a hangover. Drinking a lot with any Med is trouble with a capital T, so always keep that in mind and try not to have any binges OK? :eek:

lady_express_44 07-26-2008 07:00 PM

Naltrexone, at a dosage of 50 - 100 mg per day (we take ONLY 3.0 - 4.5 mg) is used to treat alcohol addiction.

At the much higher dosage:

"2. Why does naltrexone help for alcoholism?

First, naltrexone can reduce craving, which is the urge or desire to drink. Second, naltrexone helps patients remain abstinent. Third, naltrexone can interfere with the tendency to want to drink more if a recovering patient slips and has a drink."

11. Will I get sick If I drink while on naltrexone?

No. Naltrexone may reduce the feeling of intoxication and the desire to drink more, but it will not cause a severe physical response to drinking."

http://www.well.com/user/woa/revia/reviafaq.htm

In the following recent trial of Naltrexone (100mg) for alcoholism, obviously the participants were not required to quit drinking completely:

http://archpsyc.ama-assn.org/cgi/con...tract/65/2/135

Alcohol can have a fair bit of yeast, which seems to be a problem for us with MS. That is one consideration. If you have liver problems too . . . but that is obvious no matter what drug a person takes.

I drink with the LDN. I lost the desire to get "drunk" in 2003, with a bad attack, but I have drank as many as 5 drinks in an evening. Otherwise, I drink one or two, every couple of days.

Cherie

Bearygood 07-26-2008 07:04 PM

Well, I'm not any meds right now except Synthroid but I must say that since my dx I don't think I've "made up for not having a drink every day" even once, LOL. But Sally, you know when I do I'll be having more than one martini!! :D

It's interesting though -- my hand trouble in the morning really comes and goes and there have been a few occasions where I've noticed it's not there if I've had a drink or 2 the night before. I've actually wondered about that.

As far as the few times a year I'm inclined to yell :partytime2:, this is good to know if I ever take the LDN plunge. A hangover I can deal with.

Bearygood 07-26-2008 07:08 PM

Quote:

Originally Posted by lady_express_44 (Post 332386)
I drink with the LDN. I lost the desire to get "drunk" in 2003, with a bad attack, but I have drank as many as 5 drinks in an evening. Otherwise, I drink one or two, every couple of days.

Thanks for the additional info., Cherie!

MSacorn 07-27-2008 12:03 AM

Quote:

Originally Posted by lady_express_44 (Post 332169)
I believe this is the link to an interview with Dr Skip Lenz (Pharmacist), where he explains the immune modulatory effects of LDN:

Scroll down to:

Health Talk, August 22, 2007
On this exciting episode of Health Talk, Dr. Hoffman is joined by Dr. Skip Lenz. They discuss Low Dose Naltrexone (LDN), how it works and who should be taking it.

http://wor710.com/pages/48794.php

(I haven't time to listen to it right now, but if someone who does will let me know if this is the right link . . . thanks!)

Cherie

Yes, it is the correct link. Just search for the date 8/22/2007

SallyC 07-27-2008 12:17 PM

Great link, Cherie, I've heard it before. :) There is also an interview out there with Dr. Bahari. Both interesting.

Everyone keep in mind, though, that Skip Lenz is not a Doc and even though it's true, he knows a lot about LDN, it's effects and mechanisms, and probably the best at compounding it, it is Dr. Gluck of the LDN.org who is the expert, as a Protege of the founder of LDN for MS, Dr Bahari.:cool:

Good luck with your Neuros and PCPs to write your Scripts.:hug:

Twinkletoes 07-28-2008 01:03 PM

Quote:

Originally Posted by SallyC (Post 328809)
I suggest for all interested, to go to the LDN homepage and read and copy all pertinent info and take it to your Doc and make him read it..:D There is absolutely no good reason for any Neuro or PCP to refuse a script for you to try it. :rolleyes:..:mad:

http://www.lowdosenaltrexone.org/

:hug:


I did! I printed that off and highlighted a few areas. I sat there while he read every word!!! He said he didn't see any reason why not to try this!!!

Doing the happy dance!!! :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

The prescription is for 3 months. He suggested I come in for a blood test to make sure it wasn't causing any problems with my liver.

Woohoo!!!!

Ummm, is there a secret handshake or anything special I need to know about? I hope there's not any hazing involved to join the LDN club!!! :eek::D

lady_express_44 07-28-2008 01:25 PM

GOOD JOB, Twinkletoes!! :highfive:

What dosage did you get to start; 1.5mg, 3.0mg or 4.5mg?

A lot of people start with 1.5 mg, and make their way up in 1.5mg increments. Last I heard, Skip would make them up in 1.5mg pills, and then you can adjust (double, triple) as you see fit. You may get up to 4.5mg very quickly or decide you want to stay at 3.0mg for a long while, depending on what works for you. When you stabilize though, he could make the pill at that dosage for a long while, or forever.

Cherie

Erin524 07-28-2008 02:20 PM

Quote:

Originally Posted by Twinkletoes (Post 333557)
I did! I printed that off and highlighted a few areas. I sat there while he read every word!!! He said he didn't see any reason why not to try this!!!

Doing the happy dance!!! :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

The prescription is for 3 months. He suggested I come in for a blood test to make sure it wasn't causing any problems with my liver.

Woohoo!!!!

Ummm, is there a secret handshake or anything special I need to know about? I hope there's not any hazing involved to join the LDN club!!! :eek::D

What parts did you highlight? I go to my neuro wednesday and am going to attempt to get a Rx for some LDN. I'm afraid that he wont even consider the LDN because it's not been thru as many trials as the CRABs or any of the symptom management meds. I'm not sure he'll want to Rx any to me because it seems like most of what I've found on the internet about it is anecdotal information.

I really really want to try the LDN tho, not because I think it'll stop any progression or anything (I dont think it works that way), I just want to see if it'll work for some of the symptoms like numbness.

I just want to figure out what information would be best to print out to present to him. Last time I tried to ask about the LDN, he thought I was asking about novantrone. He wears hearing aids, and I was dumb and asked him about it when his back was to me. He didnt hear me correctly.

SallyC 07-28-2008 02:46 PM

Way to go Twink...woohoo!!! Yes what doseage?

It would be very rare to have any liver problems with such a low doseage...3mg...4.5mg. Some liver damage was reported with doses of 300mg :eek: or more.

I hope it works well for you...:hug:


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