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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

Kitty 12-19-2008 06:50 AM

Quote:

Originally Posted by Lady (Post 430182)
Very true Sally. :) I take the combo Vitamin pill. Calcium, Magnesium and Zinc. Then Vitamin D and B-12 and some others also. I take the RDA amount or a little more. I don't take huge amounts of any of them. All are taken on the advice of my MS Specialist. The reason is because of my 20+ years of using oral steroids on and off. And a few times IVSM.

I did have a bone density test recently, so far so good. These Vitamin/Minerals are good for the bones especially with age and steroid use. Always ask your doctor first before taking anything. Even Vitamins can interfere with some medication you may be taking. Some vitamins and/or Herbs are bad for MS.

Magnesium is good but if you take too much, diarrhea will result. :eek: I am sure you have heard of "Milk of Magnesia". The laxative.:)
Lady


.



I've heard that zinc is not suggested for MS patients. I have no idea why....but I've heard that. Does anyone know if it's true? I had suggested Zicam for a cold and someone said that zinc isn't good for MS. Does anyone know? Thanks! :)

barb02 12-19-2008 09:12 AM

That was me. All I know is that is what my neuro told me, and it is listed on the national MS web site as one of the supplements you should avoid or use sparingly. In fact, my neuro only suggests calcium with vitamin D and magnesium (is I want to try it).

Lady 12-19-2008 09:58 PM

Adding Zinc is not good for some people. All others it is fine, except in very small RDA doses. Zinc is used to chelate excess minerals out of the body, like Copper and Iron. It may chelate (remove) other vitamins and minerals as well. JMO

It is normally found in our bodies like iron is, but an excess or deficiency has been known to occur with some diseases.

Some say PWMS have an over active immune system. Zinc can increase the immune system's ability to fight disease, (or attack it maybe). So maybe that is the main point of why they don't recommend it. It has been known to cause ataxia, lethargy other deficiencies in higher concentrations.

It heals wounds faster, aids in bone and blood development, so some is needed. We get it in cereals, breads, grains and some nuts and other foods we eat.

I have too much Copper in my system, it's been tested, so I take the combo pill which has zinc in it to add some zinc to reduce through chelation the excess copper.

It is supposed to be good for those with ADD, and some skin diseases. It is used in ointment/cream form to help heal burns and cold sores.

This is just my opinion, btw. Just some experience and thoughts about Zinc. Other people may know more and have links.
Lady


.

jnet1589 12-20-2008 02:29 PM

Quote:

Originally Posted by Kitty (Post 430251)
I've heard that zinc is not suggested for MS patients. I have no idea why....but I've heard that. Does anyone know if it's true? I had suggested Zicam for a cold and someone said that zinc isn't good for MS. Does anyone know? Thanks! :)

Thanks you guys for all your input. I can do the spinach, but I stay away from dairy because I kind of do Swank. No, yogurt, or Milk. I drink Rice Milk. But I'll look up other foods. Thank you.

Lady 12-21-2008 12:26 AM

If you don't do any dairy, how do you get your calcium, if I might ask? Calcium is great for leg cramps and the nerves too, not just Potassium. Can you take a calcium supplement?
Lady

Lady 12-22-2008 02:26 AM

Time for a question on LDN please.:)

I am only on 1.5 mg for 7 days now. My blood pressure went from normal of 120/75 to 180/90. Has anyone had the drug raise their blood pressure?:eek:
Thanks
Lady

lady_express_44 12-22-2008 03:30 AM

Quote:

Originally Posted by Lady (Post 431793)
Time for a question on LDN please.:)

I am only on 1.5 mg for 7 days now. My blood pressure went from normal of 120/75 to 180/90. Has anyone had the drug raise their blood pressure?:eek:
Thanks
Lady

Personally, I have not heard of that on the forums (or anywhere) before, Lady. :eek:

Have you been monitoring it daily, or ?? If it were me, I think I'd monitor it regularly (if you have a monitor at home like I do) over a few days, then monitor it while going without LDN for a few days, then try LDN again, etc. It MAY just be the stress of the season or something, but testing it might help explain things. :confused:

I would also give Skip a call and see what he has to say.

I have very low blood pressure, always have had. It didn't change at all from LDN.

Let us know what you find out . . .

Cherie

Twinkletoes 12-22-2008 04:02 AM

Quote:

Originally Posted by Lady (Post 431793)
Time for a question on LDN please.:)

I am only on 1.5 mg for 7 days now. My blood pressure went from normal of 120/75 to 180/90. Has anyone had the drug raise their blood pressure?:eek:
Thanks
Lady

You know, I've always had low blood pressure. But, a couple of times since I've been on LDN it has registered higher than ever before (not as high as yours).

I hadn't even thought of a connection with the LDN. I just figured it was all those extra pounds that I keep "collecting", lol. :o

jnet1589 12-22-2008 12:09 PM

Quote:

Originally Posted by Twinkletoes (Post 431802)
You know, I've always had low blood pressure. But, a couple of times since I've been on LDN it has registered higher than ever before (not as high as yours).

I hadn't even thought of a connection with the LDN. I just figured it was all those extra pounds that I keep "collecting", lol. :o

I take fosamax and calcium supplements. Dr. Swank doesn't recommend dairy either. He did a long study on MS. I think carrots have other things have calcium in it:

Fruits and vegetables which are rich in calcium are the following:

• Orange

• Apricots

• Pears

• Prunes and other related prune fruits

• Broccoli

• Sweet potatoes

• Nearly all of the dark, green leafy vegetables

lady_express_44 12-24-2008 12:51 AM

The January LDN Newsletter is full of inspirational stories, but this one got to me:

LDN/MS update - Zillah Damon

Since my last report, my life has undergone some fundamental life-changing events.

The first began on Boxing Day 2006 when my stepson, Adam, complained about discomfort in the hip and his mobility was affected. My husband ended up spending a couple of hours with him in casualty. He was booked in for a hospital appointment in early January but none of us suspected how serious his condition was. Neither did the hospital at first then suddenly everything changed and an oncologist was called in.

He was suffering from a very virulent form of cancer of the ligament which is extremely rare. My husband and Adam’s mother took it in turns to be at his bedside, with my husband usually there at night. I visited as much as I could, although the shock hadn’t done much for my health. In fact both sides of the family were regular visitors to Adam’s bedside.

The way he dealt with this final illness at only 14 years of age was inspirational, but it claimed his life in April, only 4 short months after being diagnosed. You can imagine our feelings at his loss.

My husband was devastated and although I tried my best to support him, he was unable either to share his grief with me, or to witness any evidence of my personal grief. Unfortunately he became more and more distant, spending more and more time away from home. We eventually parted without acrimony just before Christmas 2007, when I finally made the move to live geographically closer to my family as my health was now suffering considerably; I spent a short while living with my mother until I felt able to move into my new home.

So I have just gone through 3 major causes of stress-bereavement, a marriage break-up and moving house (twice). I am convinced I would have been in hospital and on steroids if it hadn’t been for the LDN. These 3 events so close together did cause a relapse, but nothing as bad as one would have expected in normal circumstances. I am working on building myself back up again.

On the positive side, I am able to work four days a week (2 in the office and 2 from home). I have been seeing a physiotherapist who has helped with mobility, but unfortunately these appointments meant I couldn’t take additional time off to go for oxygen therapy. I do find myself getting tired and getting aches and pains. Pins and needles are more pronounced at the moment, so I plan to get back to Nailsea to resume the oxygen therapy as I feel that it and LDN combined seem to work really well for me.

It is now 14 ˝ years since I was told that I would be in a wheelchair within a year. Although I do use a scooter to walk the dog (he’s a collie and needs a lot of exercise) and I use a wheelchair for going shopping (e.g. for clothes), on the whole I’m still using my own two feet; although with crutches on occasion. Strangely enough, my situation has helped others. A friend and colleague’s wife was recently diagnosed with M.S. and immediately came to see me for some advice since they felt I was doing quite well. I wish I’d heard about L.D.N at those early stages. There isn’t a cure for M.S. yet, but I’m convinced that LDN is a great help in neutralizing its effects.

http://www.ldnresearchtrustfiles.co....s/Jan_2009.pdf

Cherie


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