Thanks, Lady! I slept really good last night.

A little while back the Thanks button wasn't working for me either. I thought it was related to getting a new laptop with Vista on it, but I really don't know. It works fine for me now. When it wasn't working, it was hit or miss.

i had a discussion/argument with a lady at my mri appointment tuesday. this woman was one of the 'MS means more smiles' set and very anti LDN. we had gotten talking about our meds and whooa boy. she takes a laundry list of drugs every day, just to feel crappy. but when i told her i only take LDN, by the look on her face you'd think i had just told her i had a nun tied up in my basement and was planning to sell her on ebay.
her big question was how could i take a drug for my ms that had no clinical evidence it would work. in her words i may as well take chicklettes. and this point has come up on here before in respect to clinical trials and all.and we know its probly never going to happen. im not saying its a conspiracy or anything. the pharmacutical industy is just that an industry. with investors and share holders just like any other. and just like any other they want a return on thier money too. so i dont take that personal.
but when ive got ,litterally, thousands of people telling me this works and with minnimal side effects to boot compared to a government sanctioned study of hundreds.

i'll go with the word of the thousands every time.

:ROTFLMAO:

Great analogy!

There weren't that many on LDN when I started, but there was one young boy (13 yrs when he got MS) that convinced me of its capability.

Like any drug, it seems to work well for some, and perhaps less for others . . . but it is a viable CHOICE.

Cherie

you know its a viable choice......i know its a viable choice.......i think pretty much everyone who reads this thread knows (or is atleast open to learning about it) of its viability.
the woman i had words with the other day was hard core dead set against the idea.
it really was kinda funny how quickly she went from being annoyingly chipper and cheerful to scolding me for my medical heresy by taking a non fda indicated medicine for ms

I never never quite undersood that....why some people were so, vehemently, against using LDN?????

I have to say, though, that some of those peeps are now on LDN, and loving it..:D

FluteMaker, Sally and Cherie. I must admit I was one of the naysayers when I first heard of LDN. In my mindset, I could not imagine a drug used so way off-label being of any use to PWMS. Then as I slowing starting getting drugs off-label from my MS Specialist in NYC years ago, like Neurontin (epilepsy drug), Provigil (Narcolepsy drug), Lyrica for PW diabetic PN and Fibro, etc. I did some soul searching.:confused:

Like what the heck am I taking all this crapola drug mix for? It seemed to work for a while, some went Generic and added my favorite, Mannitol to it, allergic to that. So I gave up all these drugs slowly until I was on nothing, including BP water pill.;) You get fed up, ya know? Almost dx'd 30 years with this MonSter. Started with Cortisone injections in the head at 16 btw. But I am older than that. Symptom relief.

Now, my local Neurologist wanted me on something. She mentioned a few, one being "T". She only prescribes approved DMD's for MS. That is her prerogative.

She said she was thinking of a drug to discuss with me and it turned out to be LDN. As you know she made my PCP write the script. She was in to it, and so I began reading as much as I could about it. I didn't know if it would help, but saw no reason for it to hurt me. It has a better track record for S.E. than the others I have tried that were approved.

I am tried of suffering S.E.'s from all these other drugs, so I am praying every night that I am a responder to LDN.:)

I am sure I am not the only one who thought LDN an odd drug of choice. When I am asked what I am taking for MS, I say "A drug currently being used for MS of all types, which has to be tried, to see if it will work for me". Somehow they don't ask what it is, what is does, or how it works. Hmm

These are the same people who don't know that PWMS jab themselves with needles daily or weekly, or so, either. So I just drop the topic.:rolleyes:
I am a honest person so I will be the first to admit, I never thought I would try an alternative medication. I am glad I did.:)
Lady

I hope LDN helps you to live a little better with MS too, Lady..:hug:

I usually find that when I'm enthusiastic about something...others don't rain on my parade. Not always, but most of the time. I really don't care what people think. Once you have your results on LDN...that is YOUR TRUTH...and nobody can take that away from you. Share YOUR story, YOUR results...YOUR truth.

For example: I share it this way...

"I am on a new medication for my MS. It's nothing short of a miracle for me. I have energy, the brain fog has lifted and the little annoying symptoms have all but disappeared. I feel wonderful! The most exciting part is that there are virtually no side effects and it only costs around $40/month verses the $2000/month I WAS paying. It's a little non-toxic pill. NO MORE SHOTS! I just take it at night before I go to bed and I feel fantastic the next day."

This is my truth...and like I said, it can't be taken away from me. ;)

If they are familiar with LDN and perhaps negative...I usually tell them that the anecdotal evidence is far more convincing to me than the standard 100-200 people trialed for the mainstream drugs. And that MY results are convincing enough for me.

I took the day off yesterday...you would be proud of me Cherie. :) Lot's of sleep. This weekend I bump my dose to 4.5mg. Skip's pharmacy said that the trick is to get to bed within 10 minutes of taking it to sleep well. That way, you fall asleep before it hits your system.

Off to play with the kids...:D

Good for you!! :hug: Rest is very important too, even though it is tempting to try to push things to the limit.

You've done so well, with the move, etc. How great for you! :)

I didn't know that, about taking it right before you go to sleep. :confused: I happen to do that anyway (it's the last thing I do before I brush my teeth), but that was more good luck then good planning. ;)

Cherie

It's ok to be skeptical, and I don't blame people if they feel that way. It does sound too good to be true, especially for people who've tried so many mainstream options that haven't worked. Who'd have thunk? :p

All I know for sure is that it works for ME. :)

Cherie