I'm going to ask my neuro again, when I see her in August. If she won't prescribe, maybe she'll agree to let my PCP. I plan to ask my PCP with or without neuro's Okay.

Should I stop other meds before starting LDN? Are they compatible?

I read somewhere, if you're on an interferon you should stop it first, but what about a chemo med (Imuran)?

How about those for sx relief, such as Baclofen?

Any guidance or others experiences are most welcome and appreciated/

's

As I mentioned previously, until the trial results are announced, they don't know for sure IF the interferons contradict LDN. Up until recently, it was Dr B's thoughts that they might cancel each other out in some way . . . but I do know of some people who found relief from LDN even while on the interferons.

As far as Imuran, I'd ask Skip. I know that people were allowed to continue with LDN in the Tysabri trials . . . but of course that is a whole different drug then Imuran.

Are you on an interferon? Does it not seem to be working for you? Have you considered Copaxone (with LDN) instead?

You can use LDN with any other symptom management drug (except Codeine and Narcotics), but most people I've talked to have found they can drop several of those meds once they start feeling better from the LDN. I dropped antidepressants after starting on LDN, but I still waited about a year to try it and I went through a long and difficult withdrawal from them. I don't take anything but the LDN now (and Naproxen, occasionally).

Cherie

Thanks so much Cherie!
I've tried the A, C, and R meds and we don't get along. That is why I take the Imuran. Not being on it is when I had my worse MS year, 2006.

I'll definitly ask about my meds before stopping them. I was wondering about a/d's as Lexapro has helped me immensely.

's

Bappy, you can go right on taking your AD, if it helps you. I have been on one the whole time I've been on LDN, For anxiety/depression.

The jury is still out on taking narcotics, too. They did a study (don't ask me where) on using Morphine and LDN together. They say it causes you to actually use less of the morphine and yet, it still works on the pain. I took Darvocet and it worked great for my pain, while still on LDN. My Doc told me to stop the LDN, but I forgot and....it didn't matter.

Imuran is an Immune system suppressant, so, I'm not so sure of it working with LDN....it seems counterproductive to me, but, I'd ask Dr Gluck of the LDN. org. He did say it was ok to take IVSM.

Good luck..

My neuro said when I first saw him his MS patients tell him LDN works. My son doesn't understandr how but my next visit in August I'm going to ask for a prescription.

Thanks for this post and the information!

Sally, I am confused. It happens alot. Does LDN boost your immune system. I have been told to avoid vitamins that do so. Doesn't copaxone suppress your immune system? And yet, you can take LDN with copaxone. Is the LDN organization recommending it for those with RR ms or just more progressive cases?

I am also wondering if anyone has found out anything more about whether or not LDN and immuran are incompatible.

My neuro has told me that LDN is just providing a placebo effect. Of course, he is the one that does not want to prescribe anti depressants or stimulants either.

Barb, LDN is not an I mmune system booster persay....It does raise your endorphin level which in turn, helps to correct your Immune system response as to, not attack your myelin.

Just as the Interferons say they are not IS suppressants(..they are, rather modulators, LDN is not an IS booster, rather, also a modulator.

Oh and LDN is recommended for all types of MS.

It's an opioid antagonist (a drug that neutralizes or counteracts the effects of another drug) I havent been able to find anything that says it boosts the immune system.

So, I guess for some reason, in the low dose, the receptor that the LDN works on, must have some problem...recepting...when the person has MS, and the LDN must somehow make it more...receptive...

I have no idea if I'm right about this, but maybe the MS makes our bodies either not produce enough of a chemical, or makes too much, or makes certain receptors in our bodies not work right...and the LDN either increases or decreases the chemical, or it makes the receptors of the chemical work better.. I dont know.... but something about the LDN helps some people with MS. Why it helps some people and not others, I dont know.

I'm going to ask my neuro about LDN next week when I see him...hopefully he wont refuse outright to give me LDN...and hopefully I'll be one of those people who can be helped by the LDN.