WooHoo, Kelly. I hope it goes well.

Wow! I had a Frank day! Finally!

I was busy all day long, then still had the energy to cook tonight. I made hamburger stroganoff -- I even tried out my new garlic mincer. And Frog's Eye salad. And boiled some chicken for a future chicken salad.

And after all that, I even cleaned the kitchen!!! *curtsies* Thank you, thank you verry much!!!

Gee, just think of all I could get done if I had this steady energy (not hyperactive) every day! I might could even get organized or something. What would THAT be like?

Too cool, Twinkletoes!!

Remember that you are likely to be a little more worn out tomorrow . . . but wasn't today great!?!

Frank, how are you making out since you had that one rough day . . . we never heard if you felt better by the next day?

I'm am looking forward to see how things go for you two on 3.0mg.

Good luck on getting the rx, Kelly.

Cherie

WooHoo Twinks, I hope this trend continues and only gets better as you titrate up on doseage.

How are you doing, Frank? Have you gone to 3mg yet?

I have been diagnosed with MS for 1.5 years now. I am in the secondary progressive stage of the disease, so I have never had to take any of the DMDs. I have just been prescribed LDN, and Skip tells me that I should receive my Rx by Friday. I am almost afraid to hope, but it sure is nice to know that at least some of us are having good luck with LDN. I’ll keep you all posted.

Welcome to the LDNers Club, Marion. At What dose will you start?

I wish you all the best with your start of LDN....and, yes, please do let us know how it goes..

Dose? You know I was just so happy to be told that I could have the Rx that I forgot to ask. I guess I'll find out when it gets here.

Sally, thank you so much for the information and encouragement. It really means a lot.

marion, welcome to the club!

When I talked to Skip at his pharmacy, he said he always starts MSers on 1.5 mg.

month #1 = 1.5 mg.
month #2 = 3 mg.
month #3 = 4.5 mg.

You and I got diagnosed just about the same time.


Frank, why did you bump your dosage up to 3 mg. already? It's none of my business, I suppose. 1.5 mg. ... 3 mg. .... 4.5

Nope, nevermind. I withdraw the question. Why should I care?

You'd just as well know the truth:

Frankly, my dear, I don't give a Gram!







Give your back a break, why don't ya? Quit moving freezers for goodness sake!!! Sheesh, how many times I gotta tell ya?

You are too funny Twink...LOL!!

Untill you get to the dose that is your dose, its all a trial by error.

I went up and down and up and down several times until I settled on my dose of 3mg and then, 2 yrs later went up to 4.5mg and here I'll stay.

Good luck, Marion. I am close to a few people who are dx PPMS and still got considerable benefit. It's all relative, of course, but for someone who hasn't sat up out of a bed in two years, suddenly being able to sit in a wheelchair for several hours a day is GREAT.

Cherie