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Old 08-20-2008, 07:21 PM #1
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Welcome Marion and congrats on being able to get a script for LDN, seems a lot of MSer's have had issues getting it

Rochelle I am so happy to hear it may be helping hopefully you didn't over do it, like I did, if ya did, sorry, but try to rest and don't worry, you and me may need to figure out how many hours of work a day is overdoing it, and even that sounds better than how i do things now, I do a little here then ease off then go back finish if i can and rest and so on and so forth.... be nice to see its ten A.M. and know i am good till 4 pm or 2

well I have been sore, my back really hurts still not sure what i did probably moving this dang freezer, who knows as for 3 mg the next day i was slow to get going will try it again tonight been 3 days

my only issue is my involuntary spasms, the race track is back, right arm right foot or leg then over to the other side and continuing around my body so am hoping 3 will ease this up some and soon or i may have to go back on one of the other meds klonopin, it did stop that from happening
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SallyC (08-20-2008), Twinkletoes (08-20-2008)
Old 08-21-2008, 02:38 PM #2
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Quote:
Originally Posted by weegot5kiz View Post
well I have been sore, my back really hurts still not sure what i did probably moving this dang freezer, who knows as for 3 mg the next day i was slow to get going will try it again tonight been 3 days

my only issue is my involuntary spasms, the race track is back, right arm right foot or leg then over to the other side and continuing around my body so am hoping 3 will ease this up some and soon or i may have to go back on one of the other meds klonopin, it did stop that from happening
Frank, there are so many changes going on, I don't know how you keep track of what is hurting/helping.

Why did you go off Klonopin so soon, since that doesn't even contradict with LDN?

Your back issue may be caused by going off Klonopin (you may still need this in the short or long run, even if LDN helps a lot).

Or, it could be a withdrawal from Klonopin.

Or, the problem may be because you are pushing yourself harder (especially without the Klonopin).

Or, it could be because you just injured yourself with the freezer and your current problem has nothing to do with MS.

Or, it could be because you upped the LDN to 3.0mg, since you are now at a dose that very well may cause some initial side-effects for you (spasticity especially). If so, that should rectify over the coming weeks . . . but it's really hard to say what is causing you the trouble at this point.

I think if I were you, I'd just stay on the drugs that are permitted, like Klonopin, at least until you stabilize on a comfortable dosage of LDN.

You are likely going to want to try 4.5mg at some point . . . so keep everything else status quo until that is "tested".

JMHO.

Cherie
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