I've taken LDN (1.5 mg) for three days now and I like it! I've felt better and have not needed a nap in the afternoon. Not sure if this is from me stopping the Neurontin and Baclofen or just extra energy from the LDN. I really don't care which it is, though! I'm just happy to feel better!

I'm not doing too much. Sort of trying to pace myself. Hope it continues!

GREAT, Kelly . . . and that's only on 1.5mg.

You've managed to ditch 2 fairly potent drugs, picked up one light one, and you are doing well . . . it's all good.

Cherie

WooHoo, my Friend....Keep it up..

Wow, sounds like everyone's doing well!
I decided to try not taking LDN for a couple of weeks, just to see what, if anything, would happen. The bladder issues all came back, I didn't get the recuperative sleep I used to..It wasn't good. Went back on LDN, and everything's back to "normal" (whatever that is)..It really does make a difference for me, and I no longer even slightly believe it's all "placebo"..

Yep, sometimes we have to prove it to ourselves..

DaM stuff works and I don't know, for sure, or care why..

Glad you are back to normal, Polar.

That is something that does intrigue me, Sally. If the scientists and researchers took the time to figure out what this drug DOES do for us, maybe they could follow along that path to a eventual cure.

In fact, any time they come out with a new theory, about a gene, or cause, I ALWAYS ask XO how LDN could affect that? He always attempts to answer the question . . .

Cherie

Do I hear just a "hint" of sarcasm there?

Seriously though, I'd be interested to know why it helps some with fatigue, some with spasticity, some with bladder issues, etc..Seems it does something a little different for everyone..

My guess is that everyone's chemical makeup is different so the effects are varied. Just like the DMD's....some people get terrible side effects and some not so much.

I'm excited to see what my increased dose of 3.0 will accomplish for me. It's hard not to bump up to it earlier than I'm supposed to (but I won't)!!

It just baffles me why more doctors are not suggesting this to their MS patients as a first choice drug. I know it the $$ thing but that's just wrong.... This just proves to me that we have to be our own best advocate when it comes to treating our condition. No longer will I blindly trust any doctor again.