Hi Kell, Marion, Cherie, Frank, SL, Twink, Polar..

Sounds like you all are doing pretty well, so far...some better than others, which is a normal thing with LDN. It seems to help everyone, in it's own way and in it's own time.

It's the raise in Endorphins, folks. That's what is giving you a feeling of well being, Marion, and could be the reason for the hot flashes ( or could be the weather or menopause ) Endorphins are also, the bodies natural pain killers.

But, what's important, I believe, is the fact that LDN is helping to slow the progression of this @^%$$@* disease, with the added benefit of helping to ease some of our SX and make others go away.

Good wishes for you all as you find your dose and your MS Plateau.

How long have each of you been taking LDN - if you don't mind me asking? What dosage have you plateaued on?

I'm just so excited and thankful for this drug.....it's certainly making my life more enjoyable.

I started April 12, 2003.. ..I was on 3mg for 3+yrs and 4.5mg for the last 2 'till now.

I too have had trouble with sleep but also had trouble prior to LDN, I do dream and or am remembering dreams now. the spasms have settled down and I am not back on the klonopin my appetite is either being effected by LDN or because I stopped the other three meds, and I am losing weight my nails are growing like weeds,

still have the muscle tightness by end of day on my left side but i do seem to be stronger physically and mentally, as for these dreams lol yowsers,

my lack of vision still seems to come as I get tired, as do the muscle pains and spasms, but during the day I am noticing, not much is happening, so I must stride to watch overdoing it and perhaps i wont have those other effects as I tire, towards the end of a day

Happy Labor Day all

Mine are too, Frank!! And they're strong! Have you noticed that your hair is growing faster? I haven't noticed that yet but I expect to since hair and nails usually respond the same.

Lots of positive things about this drug. Oh, and I have weaned down to 25 mg of Zoloft every other day. I might just quit altogether now. I'm pretty sure the LDN is helping in what might have been a hard time getting off of the AD. Not being on the Beta has helped, too, I'm sure.

Cool, Frank. Looks like you are learning how to get the most out of this.

And, it's early days yet . . .

(BTW, a lot of guys can't get over 3.0 mg for some reason . . . not sure if I mentioned that before.)

Cherie

I’ve been on 3mg of LDN for a week now. And, by the way, my dreams are normal. I often remember them, so perhaps I already dream vividly.

I've been taking LDN for nearly three years..I can't honestly say it's made a difference in progression, but it has helped with symptoms, and that's all good for me!

Oh yeah, I forgot Marion. That explains why you might be seeing some improvement in trembling, etc. I continued to improve in various small ways over a period of about 9 mo - 1 year (after moving up to 4.5 mg after 6 mo).

Cherie

I wanted to find out more about LDN since I recently started it and found this thread. I started LDN 06/19/08 at 3.0. Bumped up to 4.5 on 07/24/08 and am presently still on 4.5. It has helped my foot drop to some degree as well as bladder problems.

I did notice I'm feeling fatigue since starting it which I didn't experience before. Anyone else experience this? I also have balance problems. Anyone find the LDN has helped balance issues? I know it is primarily used to stop progression and symptom relief is a bonus.

I am encouraged by what I read here and hope more people with MS can persuade their docs to prescribe LDN.