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Old 08-31-2008, 02:11 PM #261
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Originally Posted by weegot5kiz View Post
I too have had trouble with sleep but also had trouble prior to LDN, I do dream and or am remembering dreams now. the spasms have settled down and I am not back on the klonopin my appetite is either being effected by LDN or because I stopped the other three meds, and I am losing weight my nails are growing like weeds,

still have the muscle tightness by end of day on my left side but i do seem to be stronger physically and mentally, as for these dreams lol yowsers,

my lack of vision still seems to come as I get tired, as do the muscle pains and spasms, but during the day I am noticing, not much is happening, so I must stride to watch overdoing it and perhaps i wont have those other effects as I tire, towards the end of a day

Happy Labor Day all
Cool, Frank. Looks like you are learning how to get the most out of this.

And, it's early days yet . . .

(BTW, a lot of guys can't get over 3.0 mg for some reason . . . not sure if I mentioned that before.)

Cherie
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Old 08-31-2008, 05:49 PM #262
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I’ve been on 3mg of LDN for a week now. And, by the way, my dreams are normal. I often remember them, so perhaps I already dream vividly.
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Old 08-31-2008, 10:35 PM #263
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I've been taking LDN for nearly three years..I can't honestly say it's made a difference in progression, but it has helped with symptoms, and that's all good for me!
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Old 09-01-2008, 12:38 AM #264
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I’ve been on 3mg of LDN for a week now. And, by the way, my dreams are normal. I often remember them, so perhaps I already dream vividly.
Oh yeah, I forgot Marion. That explains why you might be seeing some improvement in trembling, etc. I continued to improve in various small ways over a period of about 9 mo - 1 year (after moving up to 4.5 mg after 6 mo).

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Old 09-01-2008, 12:40 AM #265
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I've been taking LDN for nearly three years..I can't honestly say it's made a difference in progression, but it has helped with symptoms, and that's all good for me!
I'm losing track of people's stories now, Polar. You are on 4.5mg, right?

Have you had any attacks . . . are you RRMS, SPMS, or PPMS? How long have you had MS?

How have you progressed over this 3 yrs, if you don't mind me asking?

Cherie
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Old 09-01-2008, 08:04 AM #266
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I have a question for those of you who have been on LDN for a while: It is said that my fingernails may grow faster. In your experience, will the faster growing nails be stronger than before, or is it going to be the same splitting, peeling, paper-thin nails just splitting and peeling faster? Inquiring minds want to know.
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Old 09-01-2008, 11:48 AM #267
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I have a question for those of you who have been on LDN for a while: It is said that my fingernails may grow faster. In your experience, will the faster growing nails be stronger than before, or is it going to be the same splitting, peeling, paper-thin nails just splitting and peeling faster? Inquiring minds want to know.
I noticed them stronger..
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Old 09-01-2008, 12:08 PM #268
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I noticed them stronger..
Me, too, and I've only been on it a week!!
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Old 09-01-2008, 08:24 PM #269
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I wanted to find out more about LDN since I recently started it and found this thread. I started LDN 06/19/08 at 3.0. Bumped up to 4.5 on 07/24/08 and am presently still on 4.5. It has helped my foot drop to some degree as well as bladder problems.

I did notice I'm feeling fatigue since starting it which I didn't experience before. Anyone else experience this? I also have balance problems. Anyone find the LDN has helped balance issues? I know it is primarily used to stop progression and symptom relief is a bonus.

I am encouraged by what I read here and hope more people with MS can persuade their docs to prescribe LDN.
Last edited by Tree55; 09-01-2008 at 08:26 PM. Reason: wording
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Old 09-01-2008, 09:30 PM #270
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I'm losing track of people's stories now, Polar. You are on 4.5mg, right?

Have you had any attacks . . . are you RRMS, SPMS, or PPMS? How long have you had MS?

How have you progressed over this 3 yrs, if you don't mind me asking?

Cherie
4mg is my limit, I've found..My bladder starts doing somersaults when I try 4.5..I was dx'd as PPMS, the progression is mostly cognitive, with numbness in hands and buzzing in both legs..Balance has become more of a problem, slowly but steadily..Still walking though! I had an MRI a couple months ago, and it showed new and active brain lesions..My thyroid went completely wonky on me at about the same time (hypothyroid), going from 1.5 to 19.8 in a matter of a few months..All this sounds bad, but considering alternatives, I'm happy with where I'm at!
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