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Old 09-09-2008, 10:46 PM #11
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MommaD MommaD is offline
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Location: Cypress, TX
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MommaD MommaD is offline
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Join Date: Jan 2008
Location: Cypress, TX
Posts: 122
15 yr Member
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Hey There.......Twinkletoes gave me this great link about LDN.

However, I can't read all of these posts!

A couple of questions:

1. Your neuro doesn't have to prescribe this?
2. Any sides?
3. Cost - more or less than Tysabri?
4. Really can notice changes? That is exciting.


I've just about given up on Tysabri. When I first started it I developed a severe sinus infection. I was off for several months got back on and when through 5 wks of the runs. Started it back in August, and almost have full blown case of pneumonia. My PCP treated me for the above illnesses. I should also say (with head hanging) that I smoke. He put me on predinsone last week and I feel better than I have in a while. I should also mention that while I was off Ty I felt really good. I have to contact neuro to update him on this last episode. I should also mention that I have been in a relapse for about the last 8 wks. I have tried Avonex/Rebif/Novantrone/ Copaxone/ Tysabri. I just really want something that will help me and not push me back for every step I take.

Thanks for listening but I'm just so
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Deb

Dx'd - July 2001




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MommaD is offline  
"Thanks for this!" says:
marion06095 (09-10-2008), SallyC (09-09-2008), Twinkletoes (09-09-2008)
 

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