It has now been over a week since I finished up the Prednisone taper, and I am still enjoying a significant improvement in my MS symptoms. I think it is fair to say that this improvement is not due to the Prednisone. I have been pushing the envelope a bit with my mobility since I have not used my rollator or my power chair in weeks. A couple of times I did wish I had brought my rollator, but for the most part I have enjoyed a great improvement in getting around. I have overdone it a couple of times, and this resulted in a few new aches and pains, but nothing that OTC pain meds can’t take care of. I think I can honestly say that if I had felt this good years ago, I could have continued to work. The implications in the quality of my life are far reaching. This changes everything!

Ahhh Marion, I wish I could quit paying attention to National and World news, and just read this LDN thread, I much prefer what is reported here.

Posts like yours are like medicine, without the nasty side effects, and they're good for the soul as well.

Amazing isn't it, this LDN?

I am so happy for all of you who are finding such good relief from LDN.. For those of you who are not having such great results, I have to admit.....

I was not at all thrilled with LDN for about the first 6 mos. or so...I expected so much more.. It wasn't untill I realized, I was not having any new symptoms and was having some relief of existing symptoms, that I knew the stuff was working..

So, take it from me you SPMSers and PPMSers, You will not regret sticking with it....Unless, of course you are allergic to naltrexone and/or it causes you pain.

You can take away all that I own, but do not touch my LDN..

Ahhh Sally, you're so right -- LDN is amazing no matter what the "nay sayers" think. After reading these testimonials, how can so many "professionals" still say it's unproven and doesn't work?

I discovered how great it's working for me when my out of town pharmacy lost my pills somewhere between filling the script and delivering by UPS. It didn't dawn on me for awhile.....duh......why I was feeling so weak, depressed, fatigued and extra problems with bladder issues until I realized it had been ten days with no LDN. Two days after a quick call to the pharmacy I had a new batch and after the first night there was a change for the better. Of course being so advanced, I don't expect to jump out of this chair and run a marathon, but the improvements are truly noticeable plus on my last neuro visit, he said I seem to be stable and holding my own!!!!

Keep it up all you LDNers!!!!!!!

I go for my MRI this morning. Hope there's nothing new to report. Hopefully it's just a current lesion that's causing all the trouble and not a new one. I'll report back once I've gotten the results.

I'm up to the 4.5 mg dosage now. Although I haven't been on LDN too long I noticed a difference immediately, too. Unfortunately, I think I'm in the midst of a flareup. I had a sinus infection and took a round of antibiotics and then this flareup started. It's just dizziness and vision problems - the same kind I always have.

I almost think there is going to be a groundswell of MS patients demanding to try this drug. The down side seems to be nearly nonexistent, the dosage is so miniscule, the side effects are minimal, and the cost is so absolutely reasonable. When a drug is this effective, perhaps it is only a matter of time before word gets around. Leave it to the Internet to knock some of those doctors off their pedestals, and force them to open their eyes to LDN’s possibilities. Yeaaaaay US!!!

my fingers are crossed, Herekitty, lol, somehow on this board that sounds different than it does elsewhere, ,
but anyway, I hope that MRI shows nothing new.

I also hope you hurry up and get past the garbage you're going through right now.

Gotta getcha "healthier" so you can enjoy both the cooler weather down here and the benefits of your higher dose.

Judy said:Marion said:

Quote:

knock some of those doctors off their pedestals, and force them to open their eyes to LDN’s possibilities

I was fortunate, my neuro already knew of and prescribed LDN, and it was his suggestion that I take it.
I was shocked!!

He seems to approach health care differently then most Dr.s I have dealt with though.

Complimentary & alternative medicine play an integral part of his practice.

He actually learned, and now uses, acupuncture...I don't know for whom or under what circumstances, but he has one day that is acupuncture day.

Interferon depression? His 1st rx of choice is not a drug, it is Omega 3s/EPA & DHA.

But he is also aware of possible problems with some supplements and the immune system so he is as cautious and attuned to their use as he is to one's use of actual meds.

Sorry, I got lost in the wonders of my doc and his staff, but they're the folks who made my LDN possible. I LOVE them!

Yesterday was a real classic case of “two steps forward, one step back” for me. My hubby and I went to a museum for the first time since I started on LDN. Normally (before LDN), I’d use my power for such an activity but yesterday I went in without any walking aid. I was doing really well and walking seemed almost effortless (what a change for me!). I found myself fliting from one art piece to the next. Movement felt so fluid and easy. Well, my body just isn’t used to moving around so much. I ended up getting badly overheated. I immediately started feeling really lousy, and when we entered a part of the museum that was sort of like a mezzanine, I had a huge vertigo reaction (one of my usual MS symptoms if I fail to remain cool) and I ended up cutting the visit short. I had a wonderful time, but felt like kwap by the end of the day. I just love having to get used to being more mobile!

Hopefully things are stable for you Kelly.

Going back to my original posting on this thread:

I left an infection too long last year, and I paid for it with a long flare which ultimately included infection after infection (of different sorts). My doc/neuro and I have talked about going on an antibiotic on a full time basis . . . but unfortunately I am allergic to the family of drugs that the one we would use falls in, and there are apparently no other good/safe choices. Just the other day my doc said "just make sure to treat an infection at the first sign" . . . but it's not like I have an infectionmeter and I am usually very unwell before I realize what's even going on.

Kelly, could they do a blood test to see if you have infection somewhere. Maybe that sinus infection just hasn't cleared up yet.

Cherie