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![]() And now for the good news: The Chief of Neurology in Salt Lake said that everything looks like MS on the MRI, so no extras to worry about. ![]() We had a very candid discussion with him about meds, because he is not my "treating neurologist". He told us that the higher the effectiveness of the MS drugs, the more side effects they have. ![]() He also said that the MS drugs focus on the inflammation of the disease - nothing is aimed at helping the degenerative condition of the disease. He is doing a trial on an oral med right now BG something or other. He was definitely sold on Avonex and does the Tysabri infusions. He said there are about 9 different trials on MS drugs going on right now. I asked him, "what do you know about Naltrexone?" He told me about the study in San Fran, I told him about the recent grant from NMSS to do a trial on mice in PA. He wasn't aware of that one. He told me that he believes LDN will NEVER get trials done...because it requires 1/2 billion dollars to do the double blind placebo trials. And as we all know, there is no profit in LDN. I asked him, "why do you think LDN helps people with MS?" He said, "I don't know, maybe it has some anti-inflammatory qualities." Wow...an honest answer. I feel like we opened the door for him to criticize LDN and he didn't do it. Hubby and I feel very good about the direction we are headed. ![]()
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Brenda . Dx with RRMS 2/05 Avonex 3/05 LDN 11/08 |
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