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Old 11-20-2008, 01:58 PM #11
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mom2five mom2five is offline
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Join Date: Oct 2008
Location: Utah
Posts: 122
15 yr Member
Talking Great News!

Quote:
Originally Posted by lady_express_44 View Post
CONGRATULATIONS, and good luck!!

This "doc" you spoke to, was it someone who often rx's LDN for people who can't find anyone else who will . . . or just your normal doc?

All the best at your appointment, and I hope it is nothing too serious. Remember though, LDN is apparently helpful for LOTS of ailments, so maybe it will help with any others you may have too.

Cherie
First to answer your question Cherie, the doctor is a family practice doctor in PA that Rx's LDN for people because of his belief in it. He did a phone consultation. I will continue to work on my local neurologist for an Rx, but this will get me on it now. Skips pharmacy is sending the LDN!

And now for the good news:

The Chief of Neurology in Salt Lake said that everything looks like MS on the MRI, so no extras to worry about.

We had a very candid discussion with him about meds, because he is not my "treating neurologist". He told us that the higher the effectiveness of the MS drugs, the more side effects they have.

He also said that the MS drugs focus on the inflammation of the disease - nothing is aimed at helping the degenerative condition of the disease.

He is doing a trial on an oral med right now BG something or other. He was definitely sold on Avonex and does the Tysabri infusions. He said there are about 9 different trials on MS drugs going on right now.

I asked him, "what do you know about Naltrexone?" He told me about the study in San Fran, I told him about the recent grant from NMSS to do a trial on mice in PA. He wasn't aware of that one. He told me that he believes LDN will NEVER get trials done...because it requires 1/2 billion dollars to do the double blind placebo trials. And as we all know, there is no profit in LDN.

I asked him, "why do you think LDN helps people with MS?" He said, "I don't know, maybe it has some anti-inflammatory qualities." Wow...an honest answer. I feel like we opened the door for him to criticize LDN and he didn't do it.

Hubby and I feel very good about the direction we are headed.
__________________
Brenda
.

Dx with RRMS 2/05
Avonex 3/05
LDN 11/08
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