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Old 12-09-2008, 01:58 PM #11
jnet1589 jnet1589 is offline
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Join Date: Nov 2008
Location: Calfornia
Posts: 20
15 yr Member
jnet1589 jnet1589 is offline
Junior Member
 
Join Date: Nov 2008
Location: Calfornia
Posts: 20
15 yr Member
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Quote:
Originally Posted by Twinkletoes View Post
I've been on LDN for MS since Aug. 4th. My GP prescribed it, not the neuro.

Soooooh, I took Dad, age 95, to the GP today along with a printout of info (from the LDN site) which, this time he did not read. He asked, "Isn't this the same medicine you are on for your MS?" I nodded and admitted that Dad had been taking my meds for the past week.

He asked if there had been any noticeable difference. I told him, "No. But I figure it can't hurt."

The doctor agreed and immediately got out the Rx pad and put Dad on 4.5 mg. of LDN daily.

I'm really glad the oncologist would not prescribe the LDN, because then Dad wouldn't be eligible for Hospice.

Thanks you guys for all your replies. I think I have slipped into secondary progressive ms, so I'm looking for a miracle and it's just not happening. I just get nerous when I see old symtoms creep up. I put a call down to the pharmacy in Florida - Skip's Pharmacy and he has heard this call a thousand times. But it's scary. I have decided, because of a few of you to tough it out. I go up to 4.5 mg in a couple of weeks. I have had a couple of vivid dreams lol. I've had those before. My poor husband. I wake him up and ask him - "is there a man standing over my bed?" he tells me no - I know and he knows it's one of those dreams so I roll over - close my eyes and just pray until I fall back asleep.

I am hoping that the banding feeling around my calf's feel less. My badder is a little better, but balance is still shot. I have three plaques on my cerebellum. Still hoping for that miracle. I'll wish on that Christmas star!
jnet1589 is offline  
"Thanks for this!" says:
SallyC (12-09-2008), Twinkletoes (12-09-2008)
 

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