Sorry so late. Just got back from neuro appt. No news there.

Still waiting to hear back from pain doc. Called to let him know Lodine was not helping so he's either calling something else in or going to want to see me again.

I'm not avoiding you folks just up to my eyeballs busy here. The grandbaby is staying with us for now - longgggggg story..



Wish us luck with that okay?



Know my thoughts are with all of you even if my avatar is not showing up so much lately.

I guess I still belong here....The Doc told me more than ever he is convinced I should not be in limbo......I asked him if thats worth 1 buck 89 and a cup of coffee......

Since I was gone....Had mo' lesions.....Now at times certain functions just don't happen on Q........

I am in the middle of not being able to move my back at all.....That is not an exaggeration.....Top that of with a migraine from Hades.....

I'm doing my best to keep myself positive.......They wanted me at the ER....I said no way........I have a migraine and can't move my back...You want me to sit in the loud stinky bright ER.....Your nuts or High...Maybe both....



I have another MRI tomorrow.....Praying that the Migraine disipates a bit.....Ok that will be pretty terrible.....I know the machine that I'm scheduled for.....Its real small...Old and shakes....Its at 0645 am...........Now either way...That is a stinky way to start a perfectly good day.....

But No biggee....be it done......and may the machine shake some health into these bones......

Brain, hope your grandbaby helps in distracting you from the pain, although I know that seldom works. Take care of yourself, and try not to stress out too much...makes the pain feel worse

PJ...you should probably go to the ER anyway...if you let them know how miserable you're feeling they might not have you sit in the waiting room. Hope that your MRI gives you more info...and I hope you get some relief!

Not much happening...DD came in to town from Wis. to take her dad to a soccer game. She and I walked about 1 mi. on Sunday in the heat to watch him play softball. I got overheated while sitting, and when I went to take the car home, I got so weak I almost fell; felt so weird. I went back to where my DD was sitting, and she poured a bottle of water on me. After a time I felt well enough to drive home, but the next day I was so fatigued I slept all morning. Does this happen from the heat?

We need to find us some more limbolanders, I guess...no cabana boys here, either...

Hey all,
Pj sorry about your pain..hugsss

Just checkin in...
having some tough times...few days of numbness that I didnt really feel I had legs...wierd feeling...then last few days having painful ankles and wrists...
hugss all, sarah still limbo world for me

let me be of some good...even if just in my mind........i'll try to be the cabana boy.......other wise im just totally useless..unless you think im fugly and my mom dressed me funny.....if so...i would think we knew each other drowin up......because all that was soooo true....


i know i should be in er......but it solves nothing......i am even starting to get anxiety when i just go to the docs......its the anger and the prior lack of trust built up......and my decaying body plus frustration...and addin decaying mind too....

you know?

its weird I have never crossed this certain bridge before.......normally I am confident bordering on cockey...no more those days are gone with the wind...

Now I see me as a lab rat....Looking in the darkness for a way out...its futile....

on a better note....if I bring the buffett...can I be the cabana boy


http://www.margaritaville.com/

Hi gang.Still in limbo,just been a crappy week
But hey it could be worse.
i hope everyone feels better and may we all get answers soon
until next week Cheers and Group hug

Gentle hugs but boy do you guys need some answers and pain relief!!!

James, are you sure you didnt get a head injury with your fall? Did you have these migraines before? I mean you just had that very nasty fall, and that can cause headaches to be "mal-aligned."

But.. you CAN be our cabana boy~! But just be YOU ok?

Sarah, Debbie And Cathy I just hope you get some answers and relief real soon!!

I am doing ok. Learning my new job, as a hospice social worker. LOTS to learn as far as proceedures, new computor program etc. But I feel I will so well at this job.

Hugs and more hugs~!

Jan

hey all,
so someone wants to be our cabana boy woohooooo


Thanks Jan, when I see my pcp in september, I plan to ask to be referred to yet another neuro...someone recommended him to my hubby for me..she has MS....and when he talks about my sxs...she always is surprised noone has figured me out.....

so we will go for it once again, sooner or later they may feel I am a nut..this will be neuro number 4 ...but I will not go back and see a neuro if they
1st- it is all headaches...(when I dont have headaches??? )
2nd- oh traveled long way thinking the place does more testing tillt hey figure you out...nope it was a look at past MRIs and did the quickest neuro exam ever...said Fibromyagia....then didnt have that in my report...but pcp checked me and doesnt think fibro...at all..

3rd...the best neuro...lol..
said my cogfog is adult ADD...(which the neuro pysch who did my cognitive testing said my memory issues are neurological related...not ADD)
then she said my balance is all inner ear....

she said all the other sxs are stress anxiety....

we finished going over my life....she just found out I have lost one baby full term..at end of pregnancy...ok....(have 5 kids too)

I asked her, (which this neuro didnt like to be asked or questioned about any of her answers...ewwww bad idea) when I asked her if these sxs of ADD or inner ear issues, or anxiety sxs...go away when I am pregnant...???

she replied not sure on ADD and inner ear...but the other sxs cause you are HAPPY dear when you are pregnant...!!! huhhhhhhhh

then she wanted to quickly put me on meds for this and that...and said it is NOT neurological problems....we will have you see a dr about anxiety soon...

I left crying...telling my mom that if I suffer ever from anxiety it will be neuro induced anxiety not getting a dxed.....hehehehe

so here we go eventually neuro number 4...any tips....how to approach a new apt....thanks guys, sarah

I started with the headaches when my Sx's started....

But since July 19th of last year I have had a healthy diet of them..


Had MRI This AM...Way to early...0645.....It was about 20 degrees in that tube!! ..Had the cold air..The wind..The only thing missing was the snow.....



And I should promise not to post when I am that Ill........It makes for bad reading....embarrasses the heck out of me also..

I will be seeing a pysicians assistant...next week...I couldnt sleep last night...and they with my calling back saying what do I do for the stiffness pain until then....got a call back...they will start me on neurontin....(something in the plan for me with pcp for when done nursing anyhow..just never started it as of yet)

so that is where I am...I had such a rough night...stiffness in legs...bothersome...couldnt sleep...but also the ache and pain in my wrists and ankles continues....ugggg sarah