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Old 07-23-2008, 08:50 PM #1
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hey all,
so someone wants to be our cabana boy woohooooo


Thanks Jan, when I see my pcp in september, I plan to ask to be referred to yet another neuro...someone recommended him to my hubby for me..she has MS....and when he talks about my sxs...she always is surprised noone has figured me out.....

so we will go for it once again, sooner or later they may feel I am a nut..this will be neuro number 4 ...but I will not go back and see a neuro if they
1st- it is all headaches...(when I dont have headaches??? )
2nd- oh traveled long way thinking the place does more testing tillt hey figure you out...nope it was a look at past MRIs and did the quickest neuro exam ever...said Fibromyagia....then didnt have that in my report...but pcp checked me and doesnt think fibro...at all..

3rd...the best neuro...lol..
said my cogfog is adult ADD...(which the neuro pysch who did my cognitive testing said my memory issues are neurological related...not ADD)
then she said my balance is all inner ear....

she said all the other sxs are stress anxiety....

we finished going over my life....she just found out I have lost one baby full term..at end of pregnancy...ok....(have 5 kids too)

I asked her, (which this neuro didnt like to be asked or questioned about any of her answers...ewwww bad idea) when I asked her if these sxs of ADD or inner ear issues, or anxiety sxs...go away when I am pregnant...???

she replied not sure on ADD and inner ear...but the other sxs cause you are HAPPY dear when you are pregnant...!!! huhhhhhhhh

then she wanted to quickly put me on meds for this and that...and said it is NOT neurological problems....we will have you see a dr about anxiety soon...

I left crying...telling my mom that if I suffer ever from anxiety it will be neuro induced anxiety not getting a dxed.....hehehehe

so here we go eventually neuro number 4...any tips....how to approach a new apt....thanks guys, sarah
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Old 07-24-2008, 09:15 AM #2
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I started with the headaches when my Sx's started....

But since July 19th of last year I have had a healthy diet of them..


Had MRI This AM...Way to early...0645.....It was about 20 degrees in that tube!! ..Had the cold air..The wind..The only thing missing was the snow.....



And I should promise not to post when I am that Ill........It makes for bad reading....embarrasses the heck out of me also..
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Old 07-24-2008, 09:55 AM #3
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I will be seeing a pysicians assistant...next week...I couldnt sleep last night...and they with my calling back saying what do I do for the stiffness pain until then....got a call back...they will start me on neurontin....(something in the plan for me with pcp for when done nursing anyhow..just never started it as of yet)

so that is where I am...I had such a rough night...stiffness in legs...bothersome...couldnt sleep...but also the ache and pain in my wrists and ankles continues....ugggg sarah
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Old 07-24-2008, 05:50 PM #4
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Hi all-

For those of you doing well or just so so: glad to hear you are not feeling badly, may it continue.

For those of you feeling terrible: gentle hugs and a stiff drink (with an aspirin chaser?) I hope you start to feel much better soon.

Wouldn't it be wonderful if all docs got really ill at least once in thier adult lives so they could LISTEN and not just chalk our complaints up to hormones, anxiety or a virus? I am really over searching for an answer. One day there will be that Eureka moment for some good doc and I will have to fight the urge to say "I told you something was wrong"

Sorry for being such a downer, I am just really tired.
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Old 07-24-2008, 06:35 PM #5
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Jp I hear ya on the drs hehehehe hugsssss,sarah
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Old 07-25-2008, 11:53 AM #6
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I had really given up on all of them (docs). Took me 12 of them and years of looking but I think I have a pretty good team now.

My pain doc called in Ultram for me.

James, I had the SAME thing!



Migraine and locked up back from heckity. UGH... with a baby, two yappy dogs, four adults and three screeching birds in the house. Just shoot me, know what I mean?

So I drove one eyed to the pharm and got the ultram, ate one, ate a relpax and took a nap.

Tried to anyway lol.

Woke up every 5 mins all night. Still feel weird.

I really feel for you, doing the MRI with that migraine. I did my 1st one like that and couldn't see afterward. It was that bad. Glad you lived to tell.

Sarah - hope the neurontin helps. Maybe methocarbamol for the stiffness?
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Old 07-25-2008, 05:38 PM #7
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the neurontin seems to be helping with the tingling pain..that I usually get when raining..and it is raining and I am hardly tingling..hehehee

woohoooo hugsss,sarah
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