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#11 | |||
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Senior Member
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I ask because I've been on beta since Jan. I CHOSE IT ORIGINALLY BECAUSE I THOUGHT IT WAS THE STRONGRST ABLE TO BETTER COPE WITH THE MORE ACTIVE-PROGRESSIVE FORM LATE IN RRMS. I just got out of the hospital from a pretty bad exaserbation...compliments of a brand new lesion. I go followup with neuro later this morning. We will discuss new plan of attack. I hope the C works for you. Good Luck.
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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#12 | |||
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Elder
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Welcome to the copaxone club.
Best tip is the PUSH straight down into the injection for 15 to 30 seconds after. Made a HUGE change in my lumps and level of post shot comfort. DONT RUB DONT RUB DONT RUB. copaxone is made up of a sharp crystal type med, and rubbing it will break the crystals open and render them useless. Upset that no one told me how much it stung in the first couple of weeks, and that it gets MUCH better pretty quickly. As the days click off, it turns from the huge old bee bite, into a normal I just had a shot sting. The PUSH really helps make it go deeper and feel better. Magic was wiping the excess med off my skin after injection. a wet paper towel is standard post shot routine. it helped the intense burn stop. Heat or ice didnt matter in the early days, it just plain old stung for a while after the shot, and distraction was better than ice. manual feels and reacts better in my world. AI is fine, just not for me. After your first injection, call SS and get the shot wing! its a grip that you slide the needle through, and makes the wings at the top MUCH wider, and easier to hang onto for those tough to shoot areas. A fridge box is awesome! it protects your needles from being crushed or ending up under the potatoes all soggy. They have a nice ice gel pack that rocks! Please let us know how you make out. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | dmplaura (07-31-2008) |
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#13 | |||
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Magnate
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Dej already tackled what I was going to write to you about not rubbing the area you inject. Thanks again Dej!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#14 | |||
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Member
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Quote:
~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#15 | |||
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Elder
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Quote:
Dej reminded me of something. Call SS and they will send you all kinds of free stuff. They have travelling packs, neck bands, frig containers, ice packs, you name it, they have it. I couldn't believe all the stuff they sent me! Register on their online website and you see all the stuff they have! They will send you stuff all the time. I still get stuff occasionally from them and I haven't been on C for over 2 years! And I was only on it for 2 months! I had to call them to tell them to quit sending me stuff! Send it to people who are actually using the drug! You can get an extra autoinflictor if you want one, one for travelling and one for home...they are very generous. They WANT you to use their stuff! Pens, hand lotion, notepads, sunscreen, I am not kidding!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#16 | |||
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Elder Member
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hello faith good luck on the new med, rotate your injection sites, always let med warm to room temps, if it itches use ice to ease the itch and swelling, minor swelling, good luck faith
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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