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Old 07-31-2008, 06:13 AM #11
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Default Faith,

I ask because I've been on beta since Jan. I CHOSE IT ORIGINALLY BECAUSE I THOUGHT IT WAS THE STRONGRST ABLE TO BETTER COPE WITH THE MORE ACTIVE-PROGRESSIVE FORM LATE IN RRMS. I just got out of the hospital from a pretty bad exaserbation...compliments of a brand new lesion. I go followup with neuro later this morning. We will discuss new plan of attack. I hope the C works for you. Good Luck.
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Originally Posted by FaithS View Post
Jules -- Thanks for the info. :-)

Friend2U -- I've been on Beta for about 5 years. Didn 't seem to be decrasing fx or severity of flares. Most recent flare, I was hospitalized for almost 3 weeks. Also, was not keeping new lesions away on MRI's. Just didn't seem to be effective.

Started seeing an MS specialist this month, in addition to my neuro. She recommended switching. My neuro had considered it too, but she seems to be more pro-active.

I liked Beta. Every other day, instead of daily. I didn't have side effects, except for a few site reactions. But, if it doesn't work, it doesn't work.

~ Faith
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Old 07-31-2008, 07:18 AM #12
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Welcome to the copaxone club.

Best tip is the PUSH straight down into the injection for 15 to 30 seconds after. Made a HUGE change in my lumps and level of post shot comfort.

DONT RUB DONT RUB DONT RUB. copaxone is made up of a sharp crystal type med, and rubbing it will break the crystals open and render them useless.

Upset that no one told me how much it stung in the first couple of weeks, and that it gets MUCH better pretty quickly. As the days click off, it turns from the huge old bee bite, into a normal I just had a shot sting. The PUSH really helps make it go deeper and feel better.

Magic was wiping the excess med off my skin after injection. a wet paper towel is standard post shot routine. it helped the intense burn stop. Heat or ice didnt matter in the early days, it just plain old stung for a while after the shot, and distraction was better than ice.

manual feels and reacts better in my world. AI is fine, just not for me.

After your first injection, call SS and get the shot wing! its a grip that you slide the needle through, and makes the wings at the top MUCH wider, and easier to hang onto for those tough to shoot areas. A fridge box is awesome! it protects your needles from being crushed or ending up under the potatoes all soggy. They have a nice ice gel pack that rocks!

Please let us know how you make out.
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Old 07-31-2008, 08:43 AM #13
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Dej already tackled what I was going to write to you about not rubbing the area you inject. Thanks again Dej!
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05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
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Old 07-31-2008, 09:51 AM #14
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Quote:
Originally Posted by Friend2U View Post
I ask because I've been on beta since Jan. I just got out of the hospital from a pretty bad exasebation...compliments of a brand new lesion. I go followup with neuro later this morning. We will discuss new plan of attack. I hope the C works for you. Good Luck.
Hope you find a plan that works for you too. I think that all of the ABCR's may work differently for different people, and Beta is effective for some. I just wasn't one of the lucky ones

~ Faith
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Old 07-31-2008, 11:12 AM #15
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Quote:
Hope you find a plan that works for you too. I think that all of the ABCR's may work differently for different people, and Beta is effective for some. I just wasn't one of the lucky ones
That's so true Faith. That's why I am now in this clinical trial. Beta didn't work for me, neither did Ty and neither did Copaxone. Now I am a lab rat! We all have to keep looking for something that works!

Dej reminded me of something. Call SS and they will send you all kinds of free stuff. They have travelling packs, neck bands, frig containers, ice packs, you name it, they have it. I couldn't believe all the stuff they sent me!

Register on their online website and you see all the stuff they have! They will send you stuff all the time. I still get stuff occasionally from them and I haven't been on C for over 2 years! And I was only on it for 2 months! I had to call them to tell them to quit sending me stuff! Send it to people who are actually using the drug!

You can get an extra autoinflictor if you want one, one for travelling and one for home...they are very generous. They WANT you to use their stuff! Pens, hand lotion, notepads, sunscreen, I am not kidding!
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Old 07-31-2008, 12:10 PM #16
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hello faith good luck on the new med, rotate your injection sites, always let med warm to room temps, if it itches use ice to ease the itch and swelling, minor swelling, good luck faith
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