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#1 | |||
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Elder
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Good luck Faith. I switched from Beta to Copaxone. At least you won't have the flu like side effects like the interferons!!
Suggestions from my experience: I did my shot in the morning right after my shower and that way I didn't have to use the alcohol swap (skin sensitive). I sat very still for about 10-15 minutes after the shot which I found helped with the site reaction - none! I didn't use the autoinflictor at all. I had horrible site reactions from it as it was too rough for me. Once I stopped using it, the redness stopped completely! I never injected my arms, only my legs, stomach and buttock area. I also found that if the area stayed red for more than about 20 minutes, I used either arnica gel or benadryl cream/spray. I hope Copaxone works for you.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#2 | ||||
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Member
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~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#3 | |||
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Magnate
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Hello Faith!
![]() Copaxone is my first MS drug. I'm almost to the 3 month complete mark. No looking back. I've never used the Autoinjector (it's there to use if you choose, whether you do the shots with this or manually, entirely up to you!). I don't pre-heat or pre-ice either, or do either after the shot. I found the worst for me was the 20ish min. site burn after the injection. At the point I am now, I still get this in some locations. The first area for the burning to cease was the 2 spots on the lower back (just above the bum) in my case. Also, I don't find the thighs burn much (the injection part on the thighs, plus the after bump, was what I experienced, more in a bit!). The tummy for me still has the most burn after shot to this day, followed by my arms. After I do my shot, I take my cotton ball and press down firmly on the injection spot for about 30 seconds after. I find this DRASTICALLY reduced any amount of lump after the injection (thanks Dej for this one!!!). This was the best "tip" I learned ![]() Other than that, for the thighs, I find holding 2 inches of skin between 2 fingers for about 2 min before my shot really helps numb the area for injection 'pain'. Overall though, the needle is so tiny, that most of the time the injection of the needle itself doesn't hurt me. Sometimes I come across an area with tougher skin and have to use more force (that's no fun!) but overall, as a newbie myself, I find Copax is very tolerable, convenient and easy to get used to.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#4 | |||
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Member
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Thanks Laura.
For me, the tummy is the only site that I've used lately for Betaseron injections, because it has the least burn. I'll try the pressing down on the cotton ball tip if i have site reactions. I've read elsewhere, though, not to rub on the injection site (makes site reactions worse), which is one thing that they tell us to do with Betaseron, because it helps the med to go in. Do you have any experience or advice about that? ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#5 | ||
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Senior Member
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Hi Faith,
I've been on Copaxone for over 3 years now and have felt good, knock wood. I do mine before bed, don't use alcohol but I do warm it under my arm prior to shooting it. Never put heat or ice on before or after. Normally I use the autoinject although sometimes when shooting my stomach I do free hand because I don't have much fat there and it seems to swell. Rarely use my arms because not much fat there. I shoot my thighs, butt and hips the most. Sometimes it hurts but most times it doesn't and I can't put my finger on why or when it will sting. No biggie though once you get used to the feeling. I guess thats all. Wish you the best of luck with it! Jules
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#6 | |||
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Senior Member
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I'm curious why you are quitting the Beta? thanks
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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#7 | |||
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Member
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Jules -- Thanks for the info. :-)
Friend2U -- I've been on Beta for about 5 years. Didn 't seem to be decrasing fx or severity of flares. Most recent flare, I was hospitalized for almost 3 weeks. Also, was not keeping new lesions away on MRI's. Just didn't seem to be effective. Started seeing an MS specialist this month, in addition to my neuro. She recommended switching. My neuro had considered it too, but she seems to be more pro-active. I liked Beta. Every other day, instead of daily. I didn't have side effects, except for a few site reactions. But, if it doesn't work, it doesn't work. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#8 | |||
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Elder Member
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hello faith good luck on the new med, rotate your injection sites, always let med warm to room temps, if it itches use ice to ease the itch and swelling, minor swelling, good luck faith
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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