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#1 | ||
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Member
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You are NOT the only pillow weirdo!
I start the night propped up, on my back. Later I turn to my right side. Later I turn to my left side. (Depends on when I wake up and which side of my nose is stuffy.) Pillow configuration when on my back: Four under my head. One under each arm (arms straight out by my sides). One under my knees. Pillow configuration when on my right side: Four--maybe removing one to make three--under my head. One crammed up against the small of my back. One between my knees. Pillow configuration when on my left side: Four--maybe removing one to make three--under my head. One--sometimes two--under my right arm. One between my knees. Since getting a titanium bolt surgically implanted in my skull above/behind my left ear last week--first step to better hearing with the BAHA system!--my pillow configuration has changed temporarily, due to the big cup dressing covering the wound and held in place by a Velcro headband, thus I can't sleep on my left side nor exactly on my back: Five or six pillows under my head (piled up nearly vertical against the headboard), the top two moved sideways so I can use my right arm to smush them forward to cradle my head as I lie nearly sitting up. One crammed up against the small of my back. One between my knees. Can't wait til the wound heals and I can lie on my left side again! Even more... I can't wait to get this huge dressing off tomorrow so I can wash my hair for the first time in a week and hopefully scratch all that horrible itchiness beneath the "cup"! Oh, and yes, of course I can't use just any old pillow in these positions. The hardest pillow is lowest under my head, then comes a Tempur-Pedic pillow (for no particular reason except that it's smaller, and I take it out of its assignd place to use for napping on the recliner), then two smushy ones, the top one being one of the lightest-smushiest down pillows so I can smoosh it just so under my neck. The pillows under my arms must also be very smushy. If there is any difference in their smushiness, the smushier one must go under my right arm. The flat foam one goes between my knees. A merely semi-smushy pillow is best to cram against the small of my back. When lying on my left side, the pillow that goes under my right arm may be semi-smushy if a super-smushy pillow is not at hand. I am so obsessed with pillows that I even asked my surgeon if I could bring pillows for under my neck and arms during the operation! She said no, that the OR nurses set you up with something under/around your arms (it's a straitjacket, but it was fine, I was completely out of it). Still, I brought a small pillow to the hospital just in case I EVER had to lie in ANY bed where there might not be a pillow. (My knee was hurting and I needed a pillow under it.) Fortunately the nurses were very attentive and I always had a nice hospital pillow under it; they even put one under my knees for me during the operation. When I go anywhere overnight, I always take a couple of my own pillows. I always have a pillow in my car in case I need a nap while driving or at lunchtime at work. When I'm a passenger on a car trip, I take two pillows--one to smoosh under my head, and one for my lap, to rest my arms on. Sometimes I think I've lost my mind! ![]() Nancy T. |
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"Thanks for this!" says: | Friend2U (07-31-2008) |
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#2 | |||
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Senior Member
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Oh... and my dh has ONE, count them, ONE pillow. I've offered him more....said we can buy as many as we want.... there is no rule. But he wants, quite simply, JUST the one!!! NOW THAT'S WEIRD!!!!!!!!!!!!!!!
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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#3 | |||
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Grand Magnate
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Two pillows under my head, top one must be down, both high loft. A cylinder pillow from a drugstore, slippery fabric, stuffed with micro beads that goes between legs, size and slipperiness make it easier for me to change position.
Have a backergnomic pillow - Reading pillow, upright with the stuffed arms coming out for reading and TV watching. But my hips still hurt when I wake.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#4 | ||
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Member
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Chris says it's the only way he can sleep
2 under his head 1 under feet 1 under calves 1 under each arm sleeps like frankenstien on his back with both arms to his side
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Son with MS |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#5 | |||
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Magnate
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I sleep on my side, but I found that the only pillows that I can sleep on now are my Mediflow water pillows. I have 2. I don't stack them, I sprawl on my queen sized bed and either sleep on 1 or the other, depending on which is more comfortable for the night.
One is filled with 2 liters of water, the other with 3. So they're a bit different (2 liters is 'softer') to accommodate whatever I feel is more comfortable any given night ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#6 | |||
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Elder
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Wow...you all put me to shame with the amount of pillows you use!
I have two under my head...the top one is fat and firm. Have to have head high or vertigo visits me. I have a pillow next to my bed in case my back starts to bother me. It goes under my knees when I'm lying on my back, and between my legs when I am on my side. My DH has two pillows, one on each side of his head ![]() Do pillows under the calves reduce spasms during the night? Just wondering how to stop those.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#7 | ||
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Member
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I totally agree! People who only need one pillow, or who don't care what kind of pillow it is, are WEIRD! I cannot understand it!
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#8 | |||
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Grand Magnate
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When I am really unwell, I only sleep on the couch so that I can have the sturdy back support when laying on my side. I've done that for as long as a year at a time.
After my last flare, I noticed my hands and legs were numb/tingly when I awoke. My doc told me it was like a L'hirmettes reaction to having my neck in a bad angle for my lesions. I had to ditch my other two pillows, and now I only sleep with one. ![]() Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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#9 | |||
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Wise Elder
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One pillow. High quality down, it can be like many pillows as my needs for support change in different positions.
When the back spazzes are bad, I add a couple for my legs and between my knees. I confess that I have a down pillow designated to travel, one for bed, one for recliner (the only place I can sleep with vertigo), and one for the couch. There is also a huge 3ft square pillow my mom made for me that has a loose filling that is shapable. It's almost 33 years old and has been a mainstay in my arsenal all that time.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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"Thanks for this!" says: | Friend2U (08-01-2008) |
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