My mom takes it in concert with Lyrica to stop the TN pain she gets

i am on it and lyrica and klonopin it did seem to help with the spascisty(sp?) and nerve pains

and thats very true about grapefuit it a no no on tegretol

I take Trileptal (anti-siezure) and it does help my hand tinglies like nothing else has.

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Jane, Greta, Frank and Beth -- thank you for your comments and experience with Tegretol. It sounds like there were no bad side effects!! YES!!! I need to call the Coumadin Clinic being I take Warfarin since the atrial fibrillation last summer. Was going to call today, but didn't get up in time. I seem to sleep pretty good in my recliner and am not so sore in the morning (my morning) as I am sleeping in the bed.

I haven't heard about the extra blood tests yet. Have to call the neuro back in a week or so to let him know how it's working, so maybe I'll hear about it then. The "bloodsuckers" come to check my coumadin level anyway so they can probably just take an extra vial.

You guys are the greatest! I can always count on some answers when I come to this site. Thanks again........Hugs..........

Hey Judy, although undx...I am right now taking neurontin for tingling nerve pain..and helping...but today at apt..she mentioned tegretol..sp? anyhow...just told me if neurontin doesnt do it....we could try that also...instead....good luck with less pain..and hugsss,sarah

Thank you Sarah for your comments. Neuontin and I didn't go together very well, but alot of people seem to do fine with it. It's good to hear another doc thinks tegretol is good for nerve pain!

Good luck to you in your journey with this lousy disease. I pray it stays in remission for a long time as mine did. At least I was able to enjoy my kids when they were growing up. They were adults, except my youngest, she was in high school, when the "real" MS reared its ugly head.