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-   -   PwMS Dx ~ Did you have O-bands AT THE TIME OF CONFIRMED DX? (https://www.neurotalk.org/multiple-sclerosis/51544-pwms-dx-bands-time-confirmed-dx.html)

Gazelle 08-06-2008 08:22 PM

So can I select one from column A, one from column B, and two from column C? Or should I just pick the one whose name I like the best? :D (I kinda like the latter method the best.)

lady_express_44 08-06-2008 08:55 PM

Quote:

Originally Posted by Gazelle (Post 340747)
So can I select one from column A, one from column B, and two from column C? Or should I just pick the one whose name I like the best? :D (I kinda like the latter method the best.)

:D

Awe, could at least let us all have some fun by posting another poll to come up with the best dx for you . . . please. :p

Actually, I could narrow it down for you with a prior posting:

Quote:

Originally Posted by lady_express_44 (Post 333359)
Unless we have an acute Transverse Myelitis attack ... there are only a very few non-MS related diseases that can cause "lesions" in the spine, including; ADEM (Acute disseminated encephalomyelitis), Sarcoidosis, Lyme (Borrelia burgdorferi) and SLE (Lupus). See link:

ALL of those diseases also have O-bands:

http://www.diseasesdatabase.com/resu...ClassSort=True

There are "other" tests that can be done to rule out those diseases, like chest x-rays (for Sarcoidosis), Western Blot (for Lyme), blood tests positive serology with ANA and double-stranded DNA (for Lupus). Sarcoid, Lyme, and ADEM also do not have dissemination in time, which MS has.

Cherie

Twinkletoes 08-06-2008 09:08 PM

I had 11 O-bands, but only 1 lesion (in my neck).

I remember the (seemingly) suppressed excitement of the neuro doc and his PA, hoping that I could remember any previous 24+ hour Sx. I finally remembered I'd been to the chiropractor twice with a numb leg about 15 years ago. They practically jumped for joy.

That was April 13, 2007.

I was jumping for joy it wasn't something much worse/life-threatening.

hjmom 08-06-2008 09:16 PM

:DI voted - I had > 2 but I actually only had 2 - there was no option for equal to two ;)

dmplaura 08-06-2008 10:58 PM

Cherie, my understanding is that they don't go away with MS... least after hearing my neuro say, "Think of them as the age bands on a tree".

Gazelle 08-07-2008 05:55 AM

Quote:

Originally Posted by lady_express_44 (Post 340772)
:D

Awe, could at least let us all have some fun by posting another poll to come up with the best dx for you . . . please. :p

Actually, I could narrow it down for you with a prior posting:



Cherie

Wanna post a poll? Go for it! Just be nice..... :eek: :D

Seriously, I had TONS of bloodwork when I first got sick. Nada. Nothing. That is, except for the lovely abnormal LP results.

Doc 1 at this facility I'm at now said he thought maybe my first LP wasn't totally done correctly and that's why he ordered another. He also told me to get a ton of bloodwork done--again--too.

Nada. The only thing that showed a positive was the ANA but there was another titre done and that tested negative.

Chest CT was done to rule out pulmonary lesions, which a lot of MS mimickers have. Nope. Nada on the pulmonary lesions too.

I'm alternative dx free right now. Gotta come up with better than that. I'm thinking MS. :D And it ain't all in my head---I got a thoracic spine lesion too to consider. It's just getting docs to agree on "hmmm.... I see none" or "Hmmm..... I see one" or "Hmmm..... I see two lesions."

As reasonable neuros can differ in their opinions, so do I with those who don't see any where others saw at least one. And radiologists saw NONE, even with a BIG lesion in the CC.

Maybe I should just hand them MRI cards and tell 'em to "Go FISH!"

lady_express_44 08-07-2008 10:40 AM

Quote:

Originally Posted by Gazelle (Post 341018)
Wanna post a poll? Go for it! Just be nice..... :eek: :D

I'll only offer up the lesser of the evils, so we can limit the "disease" to something that is simple to fix. :D

I still think it's MS, and something messed up with the LP. Time will usually tell-all.

Cherie
___________

So far, this poll seems to be panning out similar to one we did several years ago. I think about 50% knew they had O-bands . . . not close to 90% that we read about all the time.

jowen214 08-07-2008 04:22 PM

I posted >2, but I had 2 with elevated whatever, but I did not and still do not have lesions showing on MRI. I was diagnosed by findings of my LP and the fact that I had had 2 exacerbations.

msarkie 08-08-2008 10:59 AM

My MS presented atypically, and my lesions were not enough to DX. The LP had enough O-bands to make it conclusive.

Gazelle 08-08-2008 03:54 PM

Quote:

Originally Posted by lady_express_44 (Post 341142)
I'll only offer up the lesser of the evils, so we can limit the "disease" to something that is simple to fix. :D

:D But I'm thinking "euthanasia," no matter HOW simple a cure, should not be a poll choice.


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